生物样本库中的数据保护——生物样本库长期可持续发展面临的欧洲挑战。
Data protection in biobanks--a European challenge for the long-term sustainability of biobanking.
作者信息
Schulte in den Baumen Tobias, Paci Daniele, Ibarreta Dolores
机构信息
University, Faculty of Health, Medicine and Life Sciences, Universiteitssingel (UNS), Maastricht-Randwijck, The Netherlands.
出版信息
Rev Derecho Genoma Hum. 2009 Jul-Dec(31):13-25.
The final decoding of the human genome has marked the beginning of a new era of biomedical research and both the European Commission (EC) and the Member States try to facilitate this new research direction. In most European countries biobanks are set up to improve the capacities for research. These new research infrastructures require a specific governance framework to ensure public trust and accountability.
人类基因组的最终解码标志着生物医学研究新时代的开始，欧盟委员会（EC）和各成员国都在努力推动这一新的研究方向。在大多数欧洲国家，生物样本库的建立是为了提高研究能力。这些新的研究基础设施需要一个特定的治理框架来确保公众信任和问责制。
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