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2008年《遗传信息非歧视法案》:临床医生应了解的内容。

The Genetic Information Nondiscrimination Act 2008: What clinicians should understand.

作者信息

Clifton Jennifer M, VanBeuge Susan S, Mladenka Christine, Wosnik Kelly K

机构信息

College of Nursing, University of Utah, Salt Lake City, Utah, USA.

出版信息

J Am Acad Nurse Pract. 2010 May;22(5):246-9. doi: 10.1111/j.1745-7599.2010.00504.x.

Abstract

PURPOSE

To explain the Genetic Information Nondiscrimination Act (GINA), what it covers, and what it does not cover to aid primary care practitioners in advising their patients.

DATA SOURCES

Governmental agencies, congressional records, and various nongovernmental agencies, press releases, and journal articles.

CONCLUSIONS

The GINA will protect patients from employment and insurance information in multiple ways. However, loopholes exist which will need to be addressed at the next review of the Act in 6 years.

IMPLICATIONS FOR PRACTICE

In order to provide accurate information regarding genetic testing, clinicians need to be familiar with key factors about GINA regarding law, practice, impact on patients and their rights in terms of genetic testing.

摘要

目的

解释《基因信息非歧视法案》(GINA),其涵盖的内容以及未涵盖的内容,以帮助初级保健从业者为患者提供建议。

数据来源

政府机构、国会记录以及各种非政府机构、新闻稿和期刊文章。

结论

GINA将通过多种方式保护患者免受就业和保险方面的基因信息歧视。然而,该法案存在漏洞,需要在6年后的下一次审查中加以解决。

对实践的启示

为了提供有关基因检测的准确信息,临床医生需要熟悉GINA在法律、实践、对患者的影响以及他们在基因检测方面的权利等关键因素。

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