Petit-Zeman Sophie, Philpots Elizabeth, Denegri Simon
Association of Medical Research Charities, London, UK.
J Ambul Care Manage. 2010 Jul-Sep;33(3):249-56. doi: 10.1097/JAC.0b013e3181e5d279.
Improving patient and public involvement in research is now an established goal of UK science policy. With many medical research charities often representing distinct patient groups as part of their broader charitable role, or having strong patient groups allied to them, patient and public involvement would seem "natural ground" for them. The Association of Medical Research Charities Natural Ground project brought together a learning set of staff and volunteers from member organizations to discuss current activities and share best practice. This article identifies 5 areas where medical research charities involve patients and discusses some of the methods used.
提高患者和公众对研究的参与度现已成为英国科学政策的既定目标。许多医学研究慈善机构通常作为其更广泛慈善角色的一部分,代表不同的患者群体,或者有强大的患者群体与其结盟,患者和公众的参与对它们来说似乎是“自然领域”。医学研究慈善机构协会的“自然领域”项目召集了成员组织的一批工作人员和志愿者,共同讨论当前活动并分享最佳实践。本文确定了医学研究慈善机构让患者参与的5个领域,并讨论了所使用的一些方法。