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在线社区中的依从性或患者赋权:医疗服务的变革?

Compliance or patient empowerment in online communities: reformation of health care services?

作者信息

Wentzer Helle, Bygholm Ann

机构信息

Virtual Center of Health Informatics, E-Learning Lab, Department of Communication and Psychology, Aalborg University, Denmark.

出版信息

Stud Health Technol Inform. 2010;157:141-7.

Abstract

New technologies enable a different organization of the public's admission to health care services. The article discusses whether online support groups in patient treatment are to be understood in the light of patient empowerment or within the tradition of compliance. The back-ground material of the discussion is complementary data from quantitative research on characteristics of patient support groups, and from two qualitative, in depth studies of the impact of patient networks for lung patients and for women with fertility problems. We conclude that in spite of the potential of online communities of opening up health care to the critical voice of the public, the quantitative and qualitative studies surprisingly point to a synthesis of the otherwise opposite positions of empowerment and compliance in patient care. Thereby the critical potential of online communities in health care services seems reverted into configuring ideal patients from diverse users.

摘要

新技术使公众获取医疗保健服务的方式有所不同。本文探讨了在患者治疗中,在线支持小组应被理解为患者赋权的体现,还是遵循依从性传统。讨论的背景材料包括关于患者支持小组特征的定量研究的补充数据,以及对肺病患者和有生育问题的女性患者网络影响的两项定性深入研究。我们得出的结论是,尽管在线社区有可能让公众对医疗保健发出批评声音,但定量和定性研究令人惊讶地表明,在患者护理中,赋权和依从性这两种原本相反的立场出现了融合。因此,医疗保健服务中在线社区的批判潜力似乎已转变为从不同用户中塑造理想患者。

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