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脑瘫患儿母亲的生活质量与患儿运动功能在康复十个月后的关系。

Relation between quality of life of mothers of children with cerebral palsy and the children's motor functioning, after ten months of rehabilitation.

作者信息

Prudente Cejane Oliveira Martins, Barbosa Maria Alves, Porto Celmo Celeno

机构信息

Universidade Católica de Goiás, Brazil.

出版信息

Rev Lat Am Enfermagem. 2010 Mar-Apr;18(2):149-55. doi: 10.1590/s0104-11692010000200002.

Abstract

This study aims to analyze the quality of life of mothers of children with cerebral palsy, correlated with the evolution of their children's gross motor function after ten months of rehabilitation. An observational, longitudinal study was carried out in Goiânia, Goiás, Brazil, involving 100 mothers and children with cerebral palsy. The children's motor function was evaluated using the Gross Motor Function Measure (GMFM) and the mothers' quality of life using the Medical Outcomes Study 36-item Short Form Health Survey (SF-36). After ten months of rehabilitation, the children's gross motor function had significantly improved (p<0.001), while the mothers only presented a significant improvement (p<0.001) in the bodily pain domain. The improvement in the motor function of children with cerebral palsy did not influence the changes in the mothers' quality of life.

摘要

本研究旨在分析脑瘫患儿母亲的生活质量,并将其与患儿康复十个月后粗大运动功能的进展情况相关联。在巴西戈亚斯州戈亚尼亚市开展了一项观察性纵向研究,涉及100名脑瘫患儿及其母亲。使用粗大运动功能测量量表(GMFM)评估患儿的运动功能,使用医学结局研究36项简短健康调查问卷(SF-36)评估母亲的生活质量。经过十个月的康复治疗后,患儿的粗大运动功能有显著改善(p<0.001),而母亲仅在身体疼痛领域有显著改善(p<0.001)。脑瘫患儿运动功能的改善并未影响其母亲生活质量的变化。

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