麦迪逊诊所：一家合作式儿科姑息治疗门诊的评估
The Madison Clinic: Evaluation of a collaborative outpatient paediatric palliative care clinic.
作者信息
Siden Harold, Straatman Lynn, Miller Tanice, Ham Jennifer
机构信息
University of British Columbia, British Columbia.
出版信息
Paediatr Child Health. 2009 Jul;14(6):379-84.
BACKGROUND
A multidisciplinary outpatient clinic at a tertiary care children's hospital supported and staffed by a children's hospice was created to enhance and expand the inpatient palliative care services available to families of children with life-limiting conditions. This clinic was created with input from clinicians, program leaders and families in developing the goals and format.
METHOD
The clinic was evaluated with indicators that included program data from palliative care consultations. This information was collected and recorded on a prospective basis.
RESULTS
In the first 29 months of operation, 43 clinics were held, 39 individual patients were seen and there were 59 visits. The majority of visits were for pain and symptom management (75%), while 20% were for assessment for the hospice program. The hospice-palliative care team also provided telephone support, videoconference support and inpatient consultations. Patients reported overall satisfaction with their experiences at the clinic.
DISCUSSION
A major benefit of this outpatient palliative care clinic is its ability to offer continuity of care for patients and their families. It also serves as a preliminary introduction to palliative care, particularly significant for families who are not yet ready to learn about or engage in the full hospice program.
背景
一家三级儿童专科医院设立了一个多学科门诊诊所，由一家儿童临终关怀机构提供支持并配备人员，旨在加强和扩大为患有危及生命疾病的儿童家庭提供的住院姑息治疗服务。该诊所是在临床医生、项目负责人和家庭的参与下制定目标和形式的。
方法
该诊所采用包括姑息治疗咨询项目数据在内的指标进行评估。这些信息是前瞻性收集和记录的。
结果
在运营的前29个月里，共举办了43次门诊，接待了39名个体患者，进行了59次问诊。大多数问诊是为了疼痛和症状管理（75%），而20%是为了评估临终关怀项目。临终关怀-姑息治疗团队还提供电话支持、视频会议支持和住院咨询。患者对他们在诊所的经历总体满意。
讨论
这个门诊姑息治疗诊所的一个主要好处是它能够为患者及其家庭提供持续护理。它还作为姑息治疗的初步介绍，对尚未准备好了解或参与完整临终关怀项目的家庭尤为重要。
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