Baumberger H
Schweizerische Vereinigung Morbus Bechterew, Zürich.
Schweiz Rundsch Med Prax. 1991 Jun 4;80(23):644-9.
Ankylosing spondylitis (AS) is the third most common form of rheumatism and as such of considerable economic and social significance due to its early outbreak, its course of flare-ups and its remissions, chronic persistence and risk of early invalidity. As there is no basic therapy, the main emphasis of modern treatment lies on the practice of regular and intensive AS-specific physical exercise, complemented by suitable sports. In these circumstances, the active cooperation of the patients themselves is of utmost importance; therefore, it was obvious that the information of AS patients on their disease and their interest to improve their physical and psychological situation would be further encouraged by the foundation of a self-assistance organization for AS patients, thereby lightening the blow fate had dealt them. The Swiss Ankylosing Spondylitis Association (Schweizerische Vereinigung Morbus Bechterew, SVMB, Société de la spondylarthrite ankylosante, SSSA, Società svizzera morbo di Bechterew, SSMB), founded in 1978, has its headquarters in Zurich (Röntgenstrasse 22, CH-8005 Zurich, Tel. 01 272 78 66) and strives for the following: --the organization of local and regional therapy groups for AS gymnastics and sports --information for patients and their families on all aspects concerning AS --preparation of 'contact' meetings between AS patients to exchange experiences and thoughts --information for doctors on the latest developments in the field of AS and about the activities of the AS Society --promotion of research in the field of AS and its related diseases --information to the general population about the physical aspects of AS and the problems confronting AS patients --cooperation with other AS societies within the framework of the Ankylosing Spondylitis International Federation, ASIF.
强直性脊柱炎(AS)是第三常见的风湿病形式,因其早期发病、发作和缓解过程、慢性持续性以及早期致残风险,具有相当大的经济和社会意义。由于尚无基础疗法,现代治疗的主要重点在于定期且强化进行针对AS的体育锻炼,并辅以适当的运动。在这种情况下,患者自身的积极配合至关重要;因此,很明显,为AS患者建立一个自助组织,鼓励AS患者了解自身疾病,并激发他们改善身体和心理状况的意愿,从而减轻命运对他们的打击。瑞士强直性脊柱炎协会(Schweizerische Vereinigung Morbus Bechterew,SVMB,Société de la spondylarthrite ankylosante,SSSA,Società svizzera morbo di Bechterew,SSMB)成立于1978年,总部位于苏黎世(伦琴街22号,CH - 8005苏黎世,电话:01 272 78 66),并致力于以下目标:——组织针对AS体操和运动的地方及区域治疗小组;——为患者及其家属提供有关AS各方面的信息;——筹备AS患者之间的“交流”会议,以交流经验和想法;——向医生提供AS领域的最新进展以及AS协会活动的信息;——促进AS及其相关疾病领域的研究;——向公众宣传AS的身体状况以及AS患者面临的问题;——在强直性脊柱炎国际联盟(ASIF)的框架内与其他AS协会合作。