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[瑞士别赫捷列夫病协会:一个患者自助组织]

[Swiss Bechterew's Disease Association: a patient self-help organization].

作者信息

Baumberger H

机构信息

Schweizerische Vereinigung Morbus Bechterew, Zürich.

出版信息

Schweiz Rundsch Med Prax. 1991 Jun 4;80(23):644-9.

PMID:2063048
Abstract

Ankylosing spondylitis (AS) is the third most common form of rheumatism and as such of considerable economic and social significance due to its early outbreak, its course of flare-ups and its remissions, chronic persistence and risk of early invalidity. As there is no basic therapy, the main emphasis of modern treatment lies on the practice of regular and intensive AS-specific physical exercise, complemented by suitable sports. In these circumstances, the active cooperation of the patients themselves is of utmost importance; therefore, it was obvious that the information of AS patients on their disease and their interest to improve their physical and psychological situation would be further encouraged by the foundation of a self-assistance organization for AS patients, thereby lightening the blow fate had dealt them. The Swiss Ankylosing Spondylitis Association (Schweizerische Vereinigung Morbus Bechterew, SVMB, Société de la spondylarthrite ankylosante, SSSA, Società svizzera morbo di Bechterew, SSMB), founded in 1978, has its headquarters in Zurich (Röntgenstrasse 22, CH-8005 Zurich, Tel. 01 272 78 66) and strives for the following: --the organization of local and regional therapy groups for AS gymnastics and sports --information for patients and their families on all aspects concerning AS --preparation of 'contact' meetings between AS patients to exchange experiences and thoughts --information for doctors on the latest developments in the field of AS and about the activities of the AS Society --promotion of research in the field of AS and its related diseases --information to the general population about the physical aspects of AS and the problems confronting AS patients --cooperation with other AS societies within the framework of the Ankylosing Spondylitis International Federation, ASIF.

摘要

强直性脊柱炎(AS)是第三常见的风湿病形式,因其早期发病、发作和缓解过程、慢性持续性以及早期致残风险,具有相当大的经济和社会意义。由于尚无基础疗法,现代治疗的主要重点在于定期且强化进行针对AS的体育锻炼,并辅以适当的运动。在这种情况下,患者自身的积极配合至关重要;因此,很明显,为AS患者建立一个自助组织,鼓励AS患者了解自身疾病,并激发他们改善身体和心理状况的意愿,从而减轻命运对他们的打击。瑞士强直性脊柱炎协会(Schweizerische Vereinigung Morbus Bechterew,SVMB,Société de la spondylarthrite ankylosante,SSSA,Società svizzera morbo di Bechterew,SSMB)成立于1978年,总部位于苏黎世(伦琴街22号,CH - 8005苏黎世,电话:01 272 78 66),并致力于以下目标:——组织针对AS体操和运动的地方及区域治疗小组;——为患者及其家属提供有关AS各方面的信息;——筹备AS患者之间的“交流”会议,以交流经验和想法;——向医生提供AS领域的最新进展以及AS协会活动的信息;——促进AS及其相关疾病领域的研究;——向公众宣传AS的身体状况以及AS患者面临的问题;——在强直性脊柱炎国际联盟(ASIF)的框架内与其他AS协会合作。

相似文献

1
[Swiss Bechterew's Disease Association: a patient self-help organization].[瑞士别赫捷列夫病协会:一个患者自助组织]
Schweiz Rundsch Med Prax. 1991 Jun 4;80(23):644-9.
2
[Bechterew's disease: practical guidelines of the Swiss Society Bechterew's Disease].[贝赫切特病:瑞士贝赫切特病协会实用指南]
Krankenpfl Soins Infirm. 1981 May(5):42-3.
3
[Specific and aspecific sports activities of patients with Bechterew's disease].
Rehabilitation (Stuttg). 1997 Feb;36(1):48-50.
4
[Sports therapy in Bechterew's disease--presentation of a new treatment concept].[贝赫切特病的运动疗法——一种新治疗理念的介绍]
Rehabilitation (Stuttg). 1993 May;32(2):146-8.
5
[Sports and recreational activities as a form of functional treatment of patients with ankylosing spondilytis].[体育和娱乐活动作为强直性脊柱炎患者的一种功能治疗形式]
Acta Med Croatica. 2007;61 Suppl 1:57-61.
6
[Psychodynamics of Bechterew's disease].[别赫捷列夫病的心理动力学]
Z Psychosom Med Psychoanal. 1981 Jul-Sep;27(3):201-15.
7
[Recreation in community--experiences of the SUPRA pilot project].[社区中的娱乐活动——SUPRA试点项目的经验]
Acta Med Croatica. 2007;61 Suppl 1:41-4.
8
[Socio-professional aspects of ankylosing spondylitis in Switzerland].
Z Rheumatol. 1996 Mar-Apr;55(2):105-13.
9
[Physical training in Bechterew's disease].[别赫捷列夫病的体育锻炼]
Tidsskr Nor Laegeforen. 1978 Jan 30;98(3):136-8.
10
[More power for patients: the patients' forum--a joint platform for the medical profession and patient self-help groups].为患者赋予更多权力:患者论坛——医学专业与患者自助团体的联合平台
Z Arztl Fortbild Qualitatssich. 2001 Aug;95(8):531-3.

引用本文的文献

1
Accomplishments of Heinz Baumberger PhD: a remarkable patient with ankylosing spondylitis for 72 years.
Clin Rheumatol. 2016 Jun;35(6):1637-41. doi: 10.1007/s10067-016-3259-0. Epub 2016 Apr 25.
2
Factors related to change in global health after group physical therapy in ankylosing spondylitis.强直性脊柱炎患者进行团体物理治疗后全球健康状况变化的相关因素。
Clin Rheumatol. 1995 May;14(3):347-51. doi: 10.1007/BF02208352.