Turró-Garriga Oriol, López-Pousa Secundino, Vilalta-Franch Joan, Turon-Estrada Antoni, Pericot-Nierga Imma, Lozano-Gallego Manuela, Hernández-Ferràndiz Marta, Soler-Cors Olga, Planas-Pujol Xènia, Monserrat-Vila Silvia, Garre-Olmo Josep
Unitat de Recerca, Institut d'Assistència Sanitària de Girona, Salt, Girona, España.
Rev Neurol. 2010 Aug 16;51(4):201-7.
The indirect cost associated with the care of patients with Alzheimer's disease is taken on primarily by the family.
To describe the cost associated with time dedication, its annual evolution, associated characteristics and related caregiver burden.
Non-institutionalized patients diagnosed with Alzheimer's disease who are managed on an out-patient basis in a diagnosis unit and their primary caregivers. Prospective and observational study conducted over 12 months. The patient's clinical features were assessed using the Cambrigde Cognitive Examination Revised for cognitive capacity, the Disability Assessment in Dementia for functional capacity and the Neuropsychiatric Inventory for non-cognitive disorders. Sociodemographic data were collected by means of the Cambridge Examination for Mental Disorders of the Elderly Revised. The caregiver's dedication, sociodemographic characteristics and burden (by means of the Zarit interview) were recorded.
Sample comprised of 169 patients and 169 caregivers. The cost at baseline was 6364.8 euro/year, and was mainly associated with support in instrumental activities. At 12 months, an overall increase of 29% was observed (1846.8 euro/year). Cost increase was associated with physical (F = 25.2; df = 1; p < 0.001) and cognitive (F = 8.5; df = 1; p = 0.004) disability, patient age (F = 9.2; df = 1; p = 0.003) and with whether the caregiver was the only caregiver or not (F = 20.4; df = 1; p < 0.001). The cost of care explained 6.7% of the total variance of the burden perceived by caregivers.
Care has a mean indirect cost of 6364.2 euro/year, with an annual increase of 29% that was associated with physical and cognitive disability, patient age and having one single caregiver.
阿尔茨海默病患者护理的间接成本主要由家庭承担。
描述与时间投入相关的成本、其年度变化、相关特征以及护理人员的负担。
在诊断单位接受门诊治疗的非机构化阿尔茨海默病诊断患者及其主要护理人员。进行为期12个月的前瞻性观察研究。使用修订后的剑桥认知检查评估患者的认知能力、痴呆症残疾评估评估功能能力、神经精神科问卷评估非认知障碍。通过修订后的剑桥老年精神障碍检查收集社会人口学数据。记录护理人员的投入、社会人口学特征和负担(通过扎里特访谈)。
样本包括169名患者和169名护理人员。基线成本为每年6364.8欧元,主要与工具性活动的支持有关。在12个月时,观察到总体增加了29%(每年1846.8欧元)。成本增加与身体(F = 25.2;自由度 = 1;p < 0.001)和认知(F = 8.5;自由度 = 1;p = 0.004)残疾、患者年龄(F = 9.2;自由度 = 1;p = 0.003)以及护理人员是否为唯一护理人员(F = 20.4;自由度 = 1;p < 0.001)有关。护理成本解释了护理人员感知负担总方差的6.7%。
护理的平均间接成本为每年6364.2欧元,每年增加29%,这与身体和认知残疾、患者年龄以及只有一名护理人员有关。