Menezes Melody A, Hodgson Jan M, Sahhar Margaret A, Aitken Maryanne, Metcalfe Sylvia A
Genetics Education and Health Research, Murdoch Childrens Research Institute, Parkville, Victoria, Australia.
J Genet Couns. 2010 Dec;19(6):640-52. doi: 10.1007/s10897-010-9315-z. Epub 2010 Jul 24.
Prenatal genetic counselors work with clients who are at risk of having a child with a fetal anomaly, or who have been diagnosed with a fetal anomaly. This can raise challenging ethical, moral and legal issues for both clients and counselors. Few studies have explored whether this type of work impacts on genetic counselors themselves. Interviews were conducted with 15 prenatal genetic counselors, five from Toronto, Canada and ten from Melbourne, Australia. A qualitative approach was used to allow for an in-depth exploration of the experiences of genetic counselors working in the prenatal setting. While participants reported that working in a prenatal setting affected them in several ways, this paper focuses on one particular unanticipated finding--that of the impact experienced by counselors from both countries while working when pregnant.
产前遗传咨询师为那些有生育患有胎儿异常的孩子的风险，或已被诊断出胎儿异常的客户提供服务。这可能会给客户和咨询师带来具有挑战性的伦理、道德和法律问题。很少有研究探讨这类工作对遗传咨询师自身是否有影响。我们对15名产前遗传咨询师进行了访谈，其中5名来自加拿大多伦多，10名来自澳大利亚墨尔本。采用定性研究方法，以便深入探究在产前环境中工作的遗传咨询师的经历。虽然参与者报告说在产前环境中工作在几个方面影响了他们，但本文重点关注一个特别意外的发现——来自两国的咨询师在孕期工作时所经历的影响。
