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如果患者不是为了参与决策,他们为什么想要信息呢?

Why do patients want information if not to take part in decision making?

机构信息

Department of Philosophy, Lancaster University, Lancaster LA1 4YG, UK.

出版信息

J Med Ethics. 2010 Dec;36(12):834-7. doi: 10.1136/jme.2010.036491. Epub 2010 Sep 8.

Abstract

There is empirical evidence that many patients want information about treatment options even though they do not want to take a full part in decision-making about treatment. Such evidence may have considerable ethical implications but is methodologically problematic. It is argued here that, in fact, it is not at all surprising that patients' informational interests should be separable from (and often stronger than) their interests in decision-making. A number of different reasons for wanting information are offered, some to do with the content of information; some with the process, others with the fact or occasion of informing. This philosophical clarification leads to some suggestions for further empirical study.

摘要

有经验证据表明,许多患者希望了解治疗方案的信息,即使他们不想在治疗决策中充分参与。这种证据可能具有相当大的伦理意义,但在方法论上存在问题。这里有人认为,事实上,患者的信息利益与决策利益分开(而且通常比决策利益更强),这一点毫不奇怪。提出了一些希望获得信息的不同原因,有些与信息的内容有关;有些与过程有关,有些与告知的事实或场合有关。这种哲学上的澄清导致了对进一步实证研究的一些建议。

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