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脑性瘫痪患儿肌肉骨骼功能障碍手术治疗的满意度评估

Evaluation of satisfaction with surgical treatment for musculoskeletal dysfunction in children with cerebral palsy.

作者信息

Borowski Andrzej, Kwapisz Adam, Dorman Tomasz, Grzegorzewski Andrzej, Synder Marek

机构信息

Department of Orthopaedics and Paediatric Orthopaedics, Medical University of Łódź, Poland.

出版信息

Ortop Traumatol Rehabil. 2010 Jul-Aug;12(4):347-52.

PMID:20876928
Abstract

BACKGROUND

The variety of symptoms in cerebral palsy (CP) points to the advisability of using the term 'cerebral palsies' to underline the complex nature of the associated musculoskeletal dysfunctions. The incidence of CP is estimated at 1 to 5 in 1000 live born infants. This makes CP one of the main causes of hospitalization in paediatric orthopaedic wards. The complicated nature of the musculoskeletal dysfunctions entails the necessity of employing multiple surgical procedures: starting from multilevel soft tissue operations, to multiple corrective osteotomies, to spinal surgery with implantation of baclofen pumps for subarachnoid administration. The aim of the study was to evaluate the level of satisfaction following surgery in CP children.

MATERIAL AND METHODS

The study group was composed of 52 children (27 males and 25 females) surgically treated between 1988 and 2001. There were 18 children with hemiparesis, 19 with diparesis and 15 with tetraparesis. A subjective evaluation of the level of the satisfaction of the patient and the parent/guardian after the surgical treatment was carried out during a follow-up examination.

RESULTS

Forty-three parents (82.6%) reported improvement after the surgery and declared that they would take the same decision again. Five parents reported no significant change in the quality of life of their children (9.6%), and two (3.8%) reported a deterioration.

CONCLUSION

  1. Multilevel soft tissue release in children with CP significantly improved their quality of life and was associated with a high level of parents'/guardians' satisfaction.
摘要

背景

脑瘫(CP)症状的多样性表明使用“脑性瘫痪”这一术语来强调相关肌肉骨骼功能障碍的复杂性是明智的。据估计,CP在每1000例活产婴儿中的发病率为1至5例。这使得CP成为小儿骨科病房住院的主要原因之一。肌肉骨骼功能障碍的复杂性需要采用多种外科手术:从多级软组织手术,到多次矫正截骨术,再到植入巴氯芬泵进行蛛网膜下腔给药的脊柱手术。本研究的目的是评估CP患儿术后的满意度水平。

材料与方法

研究组由1988年至2001年间接受手术治疗的52名儿童(27名男性和25名女性)组成。其中偏瘫患儿18例,双瘫患儿19例,四肢瘫患儿15例。在随访检查期间,对手术治疗后患者及其父母/监护人的满意度水平进行了主观评估。

结果

43名家长(82.6%)报告术后有所改善,并表示会再次做出相同的决定。5名家长报告其子女的生活质量无显著变化(9.6%),2名家长(3.8%)报告情况恶化。

结论

  1. CP患儿的多级软组织松解术显著改善了他们的生活质量,并与家长/监护人的高度满意度相关。

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引用本文的文献

1
Factors Contributing to Satisfaction with Changes in Physical Function after Orthopedic Surgery for Musculoskeletal Dysfunction in Patients with Cerebral Palsy.脑瘫患者肌肉骨骼功能障碍矫形手术后身体功能变化满意度的影响因素
PLoS One. 2016 May 2;11(5):e0154749. doi: 10.1371/journal.pone.0154749. eCollection 2016.