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13 个欧洲国家双相情感障碍或抑郁症患者的自卑、赋权和感知歧视:GAMIAN-Europe 研究。

Self-stigma, empowerment and perceived discrimination among people with bipolar disorder or depression in 13 European countries: the GAMIAN-Europe study.

机构信息

Health Service and Population Research Department, Institute of Psychiatry, King's College London, England.

出版信息

J Affect Disord. 2011 Mar;129(1-3):56-63. doi: 10.1016/j.jad.2010.09.001.

Abstract

BACKGROUND

There is little information on the degree to which self-stigma is experienced by individuals with a diagnosis of bipolar disorder or depression across Europe. This study describes the levels of self-stigma, stigma resistance, empowerment and perceived discrimination reported in these groups.

METHODS

Data were collected from 1182 people with bipolar disorder or depression using a mail survey with members of national mental health non-governmental organisations.

RESULTS

Over one fifth of the participants (21.7%) reported moderate or high levels of self-stigma, 59.7% moderate or high stigma resistance, 63% moderate or high empowerment, and 71.6% moderate or high perceived discrimination. In a reduced multivariate model 27% of the variance in self-stigma scores, among people with a diagnosis of bipolar disorder or depression, was accounted for by levels of empowerment, perceived discrimination, number of areas of social contact, education and employment.

LIMITATIONS

Findings are limited by the use of an unweighted sample of members of mental health charity organisations which may be unrepresentative of the reference population.

CONCLUSIONS

These findings suggest that self-stigma occurs among approximately 1 in 5 people with bipolar disorder or depression in Europe. The tailoring of interventions to counteract (or fight against) the elements of self-stigma which are most problematic for the group, be they alienation, stereotype endorsement, social withdrawal or discrimination experience, may confer benefit to people with such disorders.

摘要

背景

关于欧洲被诊断为双相情感障碍或抑郁症的个体经历自我污名化的程度,相关信息较少。本研究描述了这些群体报告的自我污名化、抗污名化、赋权和感知歧视的程度。

方法

使用邮寄调查的方式,向国家心理健康非政府组织的成员收集了 1182 名双相情感障碍或抑郁症患者的数据。

结果

超过五分之一的参与者(21.7%)报告了中度或高度的自我污名化,59.7%的参与者报告了中度或高度的抗污名化,63%的参与者报告了中度或高度的赋权,71.6%的参与者报告了中度或高度的感知歧视。在一个简化的多元模型中,双相情感障碍或抑郁症患者的自我污名化得分的 27%可以由赋权、感知歧视、社会接触领域的数量、教育和就业水平来解释。

局限性

研究结果受到使用心理健康慈善组织成员的未加权样本的限制,这些成员可能不能代表参考人群。

结论

这些发现表明,在欧洲,大约每 5 个双相情感障碍或抑郁症患者中就有 1 个存在自我污名化。针对该群体中最具问题的自我污名化元素(如疏远、刻板印象认同、社会退缩或歧视经历)量身定制干预措施,可能会使这些障碍患者受益。

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