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希望:与慢性阻塞性肺疾病共存的核心构建。

Hope: a construct central to living with chronic obstructive pulmonary disease.

机构信息

Sessional Tutor, School of Nursing and Midwifery, Griffith University, Nathan, Brisbane, Qld, AustraliaDeputy Director, Research Centre for Clinical and Community Practice Innovation Griffith University, Nathan Campus, Brisbane, Qld, AustraliaDeputy Head of School of Nursing and Midwifery, Griffith University, Nathan Campus, Brisbane, Qld, Australia.

出版信息

Int J Older People Nurs. 2009 Dec;4(4):299-306. doi: 10.1111/j.1748-3743.2009.00185.x. Epub 2009 Sep 25.

Abstract

Background.  Hope plays an integral role in health and illness and may assist individuals to cope in difficult and adverse circumstances, for instance when living with an illness such as chronic obstructive pulmonary disease (COPD), which can demand continuous adaptation. Aim.  This paper reports the meaning of hope in people living with COPD as described by seven participants involved in a home-based pulmonary maintenance program. Methods.  Using an interpretive phenomenological approach a purposive sample of seven participants were interviewed to understand participants' experiences of the phenomena of hope. An interpretative description is provided. Results.  Thematic analysis revealed a number of themes, including that hope persists despite chronic illness and the unpredictable dilemmas of living with COPD. Many benefits were found to be gained from involvement in a home-based pulmonary maintenance program, including increasing exercise capacity, hope and wellbeing. Conclusion.  Despite the limitations imposed by living with COPD participants revealed a determination to live as normal a life as possible. The pulmonary maintenance program was pivotal in assisting participants to improve exercise capacity, hope and wellbeing. Nurses may have a role to play in helping people with COPD maintain or regain hope.

摘要

背景

希望在健康和疾病中起着不可或缺的作用,它可以帮助个体在困难和不利的环境中应对,例如在患有慢性阻塞性肺疾病(COPD)等需要持续适应的疾病时。

目的

本论文报告了在参与家庭肺部维持计划的七名参与者中,希望对 COPD 患者的意义的描述。

方法

使用解释性现象学方法,对七名参与者进行了有针对性的访谈,以了解参与者对希望现象的体验。提供了一种解释性描述。

结果

主题分析揭示了一些主题,包括尽管患有慢性疾病,但希望仍然存在,以及与 COPD 共存的不可预测的困境。从参与家庭肺部维持计划中发现了许多好处,包括提高运动能力、希望和幸福感。

结论

尽管受到 COPD 的限制,参与者仍然表现出了尽可能正常生活的决心。肺部维持计划在帮助参与者提高运动能力、希望和幸福感方面发挥了关键作用。护士在帮助 COPD 患者保持或重新获得希望方面可能发挥作用。

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