Pediatric Rheumatology Unit, Centre for Child Health, Sir Ganga Ram Hospital, New Delhi, India.
Indian J Pediatr. 2010 Oct;77(10):1183-9. doi: 10.1007/s12098-010-0208-9. Epub 2010 Oct 12.
Children with rheumatologic disorders need periodic systematic evaluation of their disease status so that all aspects of the child's life that are affected can be adequately assessed. The commonest rheumatologic disease that afflicts children is Juvenile Idiopathic Arthritis (JIA). The child with JIA should have several domains assessed at regular intervals. These outcome measures include the physical, functional and the quality of life assessment measures. No single measure can capture the full impact of the disease on the child's life. This article highlights the key outcome measures in a child with JIA and introduces the readers to several disease measurement tools that have been developed for assessment of outcome for the child with JIA.
患有风湿性疾病的儿童需要定期对其疾病状况进行系统评估,以便充分评估受影响的儿童生活的各个方面。最常见的影响儿童的风湿性疾病是幼年特发性关节炎(JIA)。患有 JIA 的儿童应定期评估几个领域。这些结果衡量标准包括身体、功能和生活质量评估措施。没有单一的衡量标准可以完全捕捉到疾病对儿童生活的影响。本文重点介绍了 JIA 患儿的关键结果衡量标准,并向读者介绍了几种已为 JIA 患儿的结果评估而开发的疾病测量工具。