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癫痫和智力残疾患儿的管理挑战

Management challenges in children with both epilepsy and intellectual disability.

作者信息

Buelow Janice M, Shore Cheryl P

机构信息

Indiana University School of Nursing, 1111 Middle Dr, NU 415, Indianapolis, IN 46202, USA.

出版信息

Clin Nurse Spec. 2010 Nov-Dec;24(6):313-20. doi: 10.1097/NUR.0b013e3181f903cb.

DOI:10.1097/NUR.0b013e3181f903cb
PMID:20940569
Abstract

People who have both epilepsy and intellectual disability have significant problems requiring skilled health care management. Clinical nurse specialists have the unique opportunity to work with these people and their families to help them develop self-management and family management skills. In this article, we describe some factors associated with intellectual disability and epilepsy. In addition, we address the management challenges associated with this dual diagnoses in 3 areas: (1) problems associated with the management of seizure and prescription management, (2) problems associated with the seizure management other than prescriptions, and (3) life management issues. Finally, we suggest ways that clinical nurse specialists can foster development of management skills.

摘要

患有癫痫和智力残疾的人存在重大问题,需要专业的医疗保健管理。临床护理专家有独特的机会与这些人和他们的家人合作,帮助他们培养自我管理和家庭管理技能。在本文中,我们描述了一些与智力残疾和癫痫相关的因素。此外,我们在三个方面探讨了与这种双重诊断相关的管理挑战:(1)与癫痫发作管理和处方管理相关的问题,(2)除处方外与癫痫发作管理相关的问题,以及(3)生活管理问题。最后,我们提出了临床护理专家可以促进管理技能发展的方法。

相似文献

1
Management challenges in children with both epilepsy and intellectual disability.癫痫和智力残疾患儿的管理挑战
Clin Nurse Spec. 2010 Nov-Dec;24(6):313-20. doi: 10.1097/NUR.0b013e3181f903cb.
2
Epilepsy, intellectual disability, and living environment: a critical review.癫痫、智力残疾与生活环境:一项批判性综述
Epilepsy Behav. 2006 Aug;9(1):14-8. doi: 10.1016/j.yebeh.2006.04.001. Epub 2006 May 22.
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Consensus guidelines into the management of epilepsy in adults with an intellectual disability.成人伴智力障碍癫痫管理共识指南。
J Intellect Disabil Res. 2009 Aug;53(8):687-94. doi: 10.1111/j.1365-2788.2009.01182.x. Epub 2009 Jun 12.
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Development of a measure to assess the impact of epilepsy on people with an intellectual disability: the Glasgow Epilepsy Outcome Scale - Client version (GEOS-C).一种评估癫痫对智力残疾者影响的测量工具的开发:格拉斯哥癫痫结果量表 - 患者版(GEOS-C)。
J Intellect Disabil Res. 2006 Mar;50(Pt 3):161-71. doi: 10.1111/j.1365-2788.2005.00714.x.
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Ageing and mental health problems in people with intellectual disability.智力残疾人群的衰老与心理健康问题
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Eye movement desensitization and reprocessing in an adolescent with epilepsy and mild intellectual disability.一名患有癫痫和轻度智力障碍青少年的眼动脱敏与再处理疗法
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Association of non-adherence to antiepileptic drugs and seizures, quality of life, and productivity: survey of patients with epilepsy and physicians.抗癫痫药物治疗依从性与癫痫发作、生活质量及生产力的关系:癫痫患者及医生的调查
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A general practice-based prevalence study of epilepsy among adults with intellectual disabilities and of its association with psychiatric disorder, behaviour disturbance and carer stress.一项基于全科医疗的针对成年智障人士癫痫患病率及其与精神障碍、行为障碍和照料者压力之间关联的研究。
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Pediatric epilepsy: primary care treatment and health care management.
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