Dermatis H, Lesko L M
Department of Neurology, Memorial Sloan-Kettering Cancer Center, New York, NY 10021.
Bone Marrow Transplant. 1990 Dec;6(6):411-7.
The purpose of this study was to determine the nature and prevalence of the psychological symptomatology in parents of children undergoing bone marrow transplantation (BMT) and to investigate the manner in which certain psychosocial factors are related to parental distress associated with the informed consent process. A total of 61 parents (46 mothers and 15 fathers) were assessed with respect to psychological distress, coping styles, quality of physician-patient communication, and recall of BMT information after providing written consent for their child to have BMT. Forty-seven percent of fathers and 60% of mothers exhibited significant psychological distress of a generalized nature. Mothers exhibited a broader range of specific psychological symptomatology and more severe levels of depression and phobic anxiety than did fathers. The level of parents' distress was unrelated to characteristics of their child's disease or treatment milieu, or to parents' recall of BMT information. However, emotional coping was positively related to psychological distress whereas the quality of the communication between physician and parent was inversely related. The findings from this study suggest that approximately 50% of all parents could benefit from psychological interventions which promote the efficient utilization of coping strategies and highlight the importance of the nature of the communication style used by oncologist-investigators in obtaining informed consent.
本研究的目的是确定接受骨髓移植（BMT）患儿父母心理症状的性质和患病率，并调查某些社会心理因素与知情同意过程中父母痛苦之间的关联方式。在为孩子进行BMT提供书面同意后，对总共61名父母（46名母亲和15名父亲）进行了心理痛苦、应对方式、医患沟通质量以及对BMT信息回忆情况的评估。47%的父亲和60%的母亲表现出具有普遍性的显著心理痛苦。与父亲相比，母亲表现出更广泛的特定心理症状，以及更严重程度的抑郁和恐惧焦虑。父母的痛苦程度与孩子疾病或治疗环境的特征，或与父母对BMT信息的回忆无关。然而，情绪应对与心理痛苦呈正相关，而医患沟通质量与之呈负相关。本研究结果表明，大约50%的父母可以从心理干预中受益，这些干预措施能促进应对策略的有效运用，并突出肿瘤学研究人员在获取知情同意时所采用沟通方式的性质的重要性。
