Davys Deborah, Mitchell Duncan, Haigh Carol
University of Salford, UK.
J Intellect Disabil. 2010 Sep;14(3):167-83. doi: 10.1177/1744629510385625.
A questionnaire was e-mailed to 200 siblings on the Sibs database to explore future plans, parental expectations and sibling concerns regarding people who have a learning disability; 21 questionnaires were returned. A full discussion regarding sibling support was reported by 12 (57%) of respondents; 7 (33%) stated this discussion had not taken place, and 2 (9%) were unsure. Twelve (57%) of participants reported no clear future plan; where a plan did exist, seven (33%) of respondents claimed it was fully agreeable to both them and their parents. Eleven (52%) of respondents reported no difference between their wishes regarding their future role and parental wishes. Key themes generated were: satisfaction with services, parental influence, sibling concern about the future, futures planning, the impact of the disabled person upon sibling lives, and siblings needs. Further qualitative exploration into issues for siblings of adults who have a learning disability is required.
一份调查问卷通过电子邮件发送给了Sibs数据库中的200名兄弟姐妹，以探讨他们对于有学习障碍者的未来计划、父母期望以及兄弟姐妹的担忧；共收到21份问卷回复。12名（57%）受访者报告了关于兄弟姐妹支持的充分讨论；7名（33%）表示未进行此讨论，2名（9%）不确定。12名（57%）参与者报告没有明确的未来计划；若有计划，7名（33%）受访者称该计划他们和父母都完全同意。11名（52%）受访者报告他们对未来角色的期望与父母期望没有差异。产生的关键主题有：对服务的满意度、父母的影响、兄弟姐妹对未来的担忧、未来规划、残疾人对兄弟姐妹生活的影响以及兄弟姐妹的需求。需要对成年学习障碍者的兄弟姐妹所面临的问题进行进一步的定性探究。
