Benson Tim, Sizmur Steve, Whatling Justin, Arikan Seref, McDonald Dianna, Ingram David
Abies Ltd, London, UK.
Inform Prim Care. 2010;18(2):89-101. doi: 10.14236/jhi.v18i2.758.
Quality of life is paramount for patients and clinicians, but existing measures of health were not developed for routine use.
This paper describes the development and testing of a new generic tool for measuring health related quality of life (HRQoL) with direct comparison to the SF-12 Health Survey.
The new tool (howRu) has four items (discomfort, distress, disability and dependence), rated using four levels (none, a little, quite a lot and extreme), providing 256 possible states (4(4)); it has an aggregate scoring scheme with a range from 0 (worst) to 12 (best). Psychometric properties were examined in a telephone survey, which also recorded SF-12.
The howRu script is shorter than SF-12 (45 words vs 294 words) and has better readability statistics. 2751 subjects, all with long-term conditions (average age 62, female 62.8%), completed the survey; 21.7% were at the ceiling (no reported problems on any dimension); 0.9% at the floor. Inter-item correlations, Cronbach's alpha and principal factor analysis suggest that a single summary score is appropriate. Correlations between the physical and mental components of both howRu and SF-12 were as expected. Across all patients the howRu score was correlated with PCS-12 (r=0.74), MCS-12 (r=0.49) and the sum of PCS-12 and MCS-12 (r=0.81). Subjects were classified by howRu score, primary condition, the number of conditions suffered, age group, duration of illness and area of residence. Across all six classifications, the correlation of the mean howRu score with the mean PCS-12 for each class was r=0.91, with MCS-12, r=0.45 and with the sum of PCS-12 and MCS-12, r=0.97.
howRu is a new short generic measure of HRQoL, with good psychometric properties. It generates similar aggregate results to SF-12. It could provide a quick and easy way for practitioners to monitor the health of patients with long-term conditions.
生活质量对患者和临床医生而言至关重要,但现有的健康衡量指标并非为常规使用而设计。
本文描述了一种用于测量健康相关生活质量(HRQoL)的新型通用工具的开发与测试,并与SF - 12健康调查进行直接比较。
新工具(howRu)有四个项目(不适、痛苦、残疾和依赖),采用四个等级(无、有一点、相当多和极其严重)进行评分,共有256种可能状态(4(4));它有一个总分计分方案,范围从0(最差)到12(最佳)。在一项电话调查中检验了其心理测量特性,该调查同时记录了SF - 12。
howRu问卷比SF - 12短(45个单词对294个单词),且具有更好的可读性统计数据。2751名受试者均患有长期疾病(平均年龄62岁,女性占62.8%)完成了调查;21.7%的受试者处于上限(任何维度均无问题报告);0.9%处于下限。项目间相关性、克朗巴哈系数和主因子分析表明单一总分是合适的。howRu和SF - 12的生理和心理成分之间的相关性符合预期。在所有患者中,howRu得分与PCS - 12(r = 0.74)、MCS - (r = 0.49)以及PCS - 12与MCS - 12之和(r = 0.81)相关。根据howRu得分、主要疾病、所患疾病数量、年龄组、病程和居住地区对受试者进行分类。在所有六种分类中,每个类别中howRu平均得分与PCS - 12平均得分的相关性为r = 0.91,与MCS - 12的相关性为r = 0.45,与PCS - 12和MCS - 12之和的相关性为r = 0.97。
howRu是一种新型的简短通用HRQoL测量工具,具有良好的心理测量特性。它产生的总体结果与SF - 12相似。它可以为从业者提供一种快速简便的方法来监测患有长期疾病患者的健康状况。