Rare conditions: where do primary care and genetic diseases intersect?
作者信息
Terry Sharon F, Krokosky Alyson
机构信息
Genetic Alliance, Washington, DC, USA.
出版信息
JAAPA. 2010 Nov;23(11):63-4. doi: 10.1097/01720610-201011000-00020.
Abstract
摘要
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JAAPA. 2010 Nov;23(11):63-4. doi: 10.1097/01720610-201011000-00020.
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The utilisation of primary health care system concepts positively impacts the assistance of patients with rare diseases despite limited knowledge and experience by health care professionals: A qualitative synopsis of the evidence including approximately 78 000 individuals.尽管医疗保健专业人员的知识和经验有限，但利用初级卫生保健系统的概念积极影响了对罕见病患者的帮助：对包括约 78000 人在内的证据进行定性综述。
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