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台湾心脏移植受者对心脏移植后1至4年的工作恢复状况、阻碍因素及人际关系的认知:一项跨方法三角互证研究

Job resumption status, hindering factors, and interpersonal relationship within post-heart transplant 1 to 4 years as perceived by heart transplant recipients in Taiwan: a between-method triangulation study.

作者信息

Tseng P H, Wang S S, Chang C L, Shih F J

机构信息

Department of Nursing, National Taiwan University Hospital, Taipei, Taiwan.

出版信息

Transplant Proc. 2010 Dec;42(10):4247-50. doi: 10.1016/j.transproceed.2010.09.063.

Abstract

INTRODUCTION

This project examined heart transplant (HT) recipients' perspectives of (a) the changes in their working competence (WC), status for job resumption and related factors at 1- to 2-year, 2- to 3-year, and 3- to 4-year stages; and (b) impacts of HT on interpersonal relationships (IPR).

METHOD

We used a between-method triangulation (including qualitative and quantitative data) design. Quantitative data were collected using the Vertical Visual Analogue Scale and Taiwan's version of the World Health Organization Health-Related Quality-of-Life (HRQoL) questionnaire. Six qualitative semistructured questions were further applied to explore social and environmental domains.

RESULTS

The Fifty subjects (86% males and 14% females) had an age range from 20 to 70 years old (mean, 47.68 years). Their post-HT time ranged from 1 to 4.1 years with 42%, 42%, and 16% at 1- to 2-, 2- to 3-, or 3- to 4-years post-HT, respectively. Within 6 months, 10% of administration or restaurant staff, and police resumed their jobs. At 6 to 12 months, 8% of administration, quality control, and design and planning staff resumed their jobs. At 12 months, 14% of educators, insurance personnel, managers, informatics engineers, and ironworkers resumed their jobs. Hindering factors to returning to work included (a) physical (ie, lack of energy, second heart attack, recurrence of rejection, physical discomforts of dizziness, memory lapses/lack of concentration or bone pain from osteoporosis); (b) psychological (ie, lack of confidence, worries about discrimination, being different, maladaptation); and (c) environmental (inadequate job opportunities due to poor socioeconomic conditions). Additionally, 34% reported worse IPR after HT due to diet limitations, slower pacing, less contacts with friends, and changes in personality. Reflections on both the meaning and value of life caused 10% to report better IPR with a better personality and positive mindset. By the end of the first postoperative year, the mean score of HRQoL in the preoperative extracorporeal membrane oxygenation (ECMO) group was similar to the non-preoperative ECMO group; the mean scores of WC and physical functions for the preoperative ECMO group were even higher than the non-preoperative ECMO group. Meanwhile, the mean scores of HRQoL and WC were higher in the Clinical Trail Plan (CTP) group than non-CTP groups across the three stages. As such, the use of preoperative ECMO and CTP groups are suggested to be both clinically and significantly associated with HTs recovery in heath status, positive HRQoL, and job resumption in the society. Finally, HRQoL and related domains of physical, psychological, social, and environmental health were stable at 12 months post-HT, with no significant change between 1- to 2-, 2- to 3-, and 3- to 4-years post-HT.

摘要

引言

本项目探讨了心脏移植(HT)受者在术后1至2年、2至3年以及3至4年阶段对以下方面的看法:(a)工作能力(WC)的变化、恢复工作的状况及相关因素;(b)心脏移植对人际关系(IPR)的影响。

方法

我们采用了方法间三角验证(包括定性和定量数据)设计。定量数据通过垂直视觉模拟量表和台湾版世界卫生组织健康相关生活质量(HRQoL)问卷收集。另外还应用了六个定性半结构化问题来探索社会和环境领域。

结果

五十名受试者(86%为男性,14%为女性)年龄在20至70岁之间(平均47.68岁)。他们的心脏移植后时间从1年至4.1年不等,其中分别有42%、42%和16%处于心脏移植后1至2年、2至3年或3至4年阶段。在6个月内,10%的行政或餐饮工作人员以及警察恢复了工作。在6至12个月时,8%的行政、质量控制以及设计和规划人员恢复了工作。在12个月时,14%的教育工作者、保险人员、经理、信息工程师和钢铁工人恢复了工作。影响重返工作的阻碍因素包括:(a)身体方面(即缺乏精力、二次心脏病发作、排斥反应复发、头晕等身体不适、记忆力减退/注意力不集中或骨质疏松引起的骨痛);(b)心理方面(即缺乏信心、担心受到歧视、与众不同、适应不良);以及(c)环境方面(社会经济条件差导致工作机会不足)。此外,34%的人表示心脏移植后人际关系变差,原因包括饮食限制、节奏变慢、与朋友联系减少以及性格改变。对生活意义和价值的反思使10%的人表示人际关系因性格变好和心态积极而得到改善。到术后第一年年底,术前接受体外膜肺氧合(ECMO)治疗组的HRQoL平均得分与未接受术前ECMO治疗组相似;术前接受ECMO治疗组的WC和身体功能平均得分甚至高于未接受术前ECMO治疗组。同时,在三个阶段中,临床路径计划(CTP)组的HRQoL和WC平均得分均高于非CTP组。因此,建议术前使用ECMO和CTP组在临床上与心脏移植受者的健康状况恢复、积极的HRQoL以及社会中恢复工作显著相关。最后,心脏移植后12个月时HRQoL以及身体、心理、社会和环境健康的相关领域较为稳定,在心脏移植后1至2年、2至3年以及3至4年之间无显著变化。

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