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公众对在健康研究中使用新生儿筛查干血斑的支持。

Public support for the use of newborn screening dried blood spots in health research.

作者信息

Duquette D, Rafferty A P, Fussman C, Gehring J, Meyer S, Bach J

机构信息

Michigan Department of Community Health, Division of Genomics, Perinatal Health and Chronic Disease Epidemiology, Lansing, MI 48909, USA.

出版信息

Public Health Genomics. 2011;14(3):143-52. doi: 10.1159/000321756. Epub 2010 Dec 18.

Abstract

OBJECTIVES

The level of support among Michigan adults for the use of residual newborn screening dried blood spots (DBS) was investigated.

METHODS

We analyzed data from 4 questions on the 2008 Michigan Behavioral Risk Factor Surveillance System (n = 3,108). The questions asked about general support for the use of DBS for research and for research investigating childhood diseases, adult diseases and diseases related to environmental exposures.

RESULTS

The majority of adults (72.3%) favored the use of DBS for research intended to benefit the health of residents. With more question specificity, a higher proportion of adults (84.2%-86.8%) were found to favor the use of DBS for research, and a lower proportion had no opinion. The odds of favoring use were higher among those who were younger, female, white, healthy, or with at least a high school degree.

CONCLUSIONS

This is the first population survey of adult attitudes regarding use of DBS for different types of health research, with results showing considerable public support. The findings are being used in community outreach efforts and highlight the need to investigate opposition in vulnerable populations.

摘要

目的

调查密歇根州成年人对使用新生儿筛查干血斑(DBS)的支持程度。

方法

我们分析了2008年密歇根行为风险因素监测系统中4个问题的数据(n = 3108)。这些问题询问了对将DBS用于研究以及用于调查儿童疾病、成人疾病和与环境暴露相关疾病研究的总体支持情况。

结果

大多数成年人(72.3%)赞成将DBS用于旨在造福居民健康的研究。随着问题更具针对性,发现更高比例的成年人(84.2%-86.8%)赞成使用DBS进行研究,而持无意见的比例较低。在年龄较小、女性、白人、健康或至少拥有高中学历的人群中,赞成使用的几率更高。

结论

这是首次针对成年人对将DBS用于不同类型健康研究的态度进行的人群调查,结果显示公众给予了相当大的支持。这些发现正用于社区宣传工作,并凸显了调查弱势群体中反对意见的必要性。

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