Polubothu S, Blackmore K J, Kubba H
Department of ENT, Royal Hospital for Sick Children, Dalnair Street, Glasgow G3 8SJ, UK.
Int J Pediatr Otorhinolaryngol. 2011 Mar;75(3):425-9. doi: 10.1016/j.ijporl.2010.12.021. Epub 2011 Jan 26.
Reconstructive laryngeal surgery has been very successful in the treatment of laryngotracheal stenosis. Traditionally authors have used survival and decannulation rates as markers of success.
To evaluate the outcome of paediatric laryngotracheal surgery from the parents perspective.
Retrospective audit of all children undergoing laryngotracheal reconstruction or cricotracheal resection for laryngotracheal stenosis in a three year period at the Royal Hospital for Sick Children, Glasgow. An open-ended questionnaire was used to assess parental concerns regarding their child's airway, post-operative results and the current status of their voice, breathing and swallowing.
30 patients were eligible for the inclusion of which there were 17 responses (56%). The most common concerns pre-operatively were difficulty breathing, tracheostomy and survival. Post-operatively parents felt that breathing, voice and a reduction in the number of lower respiratory tract infections were the main improvements. We also identified the high level of importance that the parents assigned to their child's independence and ability to lead a normal life.
This study has given us a unique insight into the concerns of parents who have children with laryngotracheal stenosis. It has also allowed us to evaluate our post-operative results from a qualitative perspective through the eyes of the parents.
重建喉手术在治疗喉气管狭窄方面非常成功。传统上，作者们一直将生存率和拔管率作为成功的标志。
从家长的角度评估小儿喉气管手术的结果。
对格拉斯哥皇家儿童医院三年内所有因喉气管狭窄接受喉气管重建或环状气管切除术的儿童进行回顾性审计。使用一份开放式问卷来评估家长对孩子气道、术后结果以及他们目前的声音、呼吸和吞咽状况的担忧。
30名患者符合纳入标准，其中17人回复（56%）。术前最常见的担忧是呼吸困难、气管造口术和生存问题。术后家长们认为呼吸、声音以及下呼吸道感染次数减少是主要的改善方面。我们还发现家长非常重视孩子的独立性和过上正常生活的能力。
这项研究让我们对患有喉气管狭窄孩子的家长所担忧的问题有了独特的见解。它还使我们能够从家长的视角，通过定性的角度评估我们的术后结果。
