Department of Internal Medicine, Indiana University Medical Center, 1481 West 10th Street, 111P-IU, Indianapolis, IN 46202, USA.
J Med Ethics. 2011 May;37(5):280-4. doi: 10.1136/jme.2010.039230. Epub 2011 Feb 2.
The advent of prenatal genetic diagnosis has sparked debates among ethicists and philosophers regarding parental responsibility towards potential offspring. Some have attempted to place moral obligations on parents to not bring about children with certain diseases in order to prevent harm to such children. There has been no rigorous evaluation of cystic fibrosis in this context. This paper will demonstrate cystic fibrosis to have unique properties that make it difficult to categorize among other diseases with the goal of promulgating a reproductive rule. Once this is established, it will be demonstrated that procreative rules that appeal to future health are inadequate in the era of advancing genetic knowledge. Utilising a specification of Joel Feinberg's 'open future' concept outlined by Matteo Mameli, it will offer an analysis of parental obligation that does not constrain parents of potential children with cystic fibrosis with a moral obligation not to bring them about.
产前基因诊断的出现引发了伦理学家和哲学家关于父母对潜在后代的责任的争论。一些人试图将道德义务强加给父母，不让他们生育患有某些疾病的孩子，以防止这些孩子受到伤害。在这种情况下，还没有对囊性纤维化进行严格的评估。本文将证明囊性纤维化具有独特的性质，使其难以归入其他疾病类别，从而制定生殖规则。一旦确立了这一点，就将表明，在遗传知识不断进步的时代，呼吁关注未来健康的生殖规则是不充分的。利用马泰奥·马梅利（Matteo Mameli）概述的乔尔·范伯格（Joel Feinberg）的“开放未来”概念的一个说明，本文将提供一种分析父母义务的方法，这种方法不会用道德义务来限制患有囊性纤维化的潜在儿童的父母生育他们。
