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获取干细胞和数据:人与财产权和科学进步。

Access to stem cells and data: persons, property rights, and scientific progress.

机构信息

Johns Hopkins Berman Institute of Bioethics, Deering Hall, 208, 1809 Ashland Avenue, Baltimore, MD 21205, USA.

出版信息

Science. 2011 Feb 11;331(6018):725-7. doi: 10.1126/science.1201382.

DOI:10.1126/science.1201382
PMID:21311015
Abstract

Many fields have struggled to develop strategies, policies, or structures to optimally manage data, materials, and intellectual property rights (IPRs). There is growing recognition that the field of stem cell science, in part because of its complex IPRs landscape and the importance of cell line collections, may require collective action to facilitate basic and translational research. Access to pluripotent stem cell lines and the information associated with them is critical to the progress of stem cell science, but simple notions of access are substantially complicated by shifting boundaries between what is considered information versus material, person versus artifact, and private property versus the public domain.

摘要

许多领域一直在努力制定战略、政策或结构,以最佳地管理数据、材料和知识产权 (IPR)。人们越来越认识到,干细胞科学领域,部分原因是其复杂的知识产权景观和细胞系收集的重要性,可能需要采取集体行动来促进基础研究和转化研究。获得多能干细胞系及其相关信息对于干细胞科学的发展至关重要,但简单的访问概念因以下因素而变得复杂:信息与材料、人与制品、私有财产与公有领域之间的界限不断变化。

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1
Access to stem cells and data: persons, property rights, and scientific progress.获取干细胞和数据:人与财产权和科学进步。
Science. 2011 Feb 11;331(6018):725-7. doi: 10.1126/science.1201382.
2
Promoting justice in stem cell intellectual property.促进干细胞知识产权中的公正。
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Public access versus proprietary rights in genomic information: what is the proper role of intellectual property rights?基因组信息中的公共获取与所有权:知识产权的恰当作用是什么?
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Whose body is it anyway? Human cells and the strange effects of property and intellectual property law.究竟是谁的身体?人体细胞与财产法和知识产权法的奇特影响。
Stanford Law Rev. 2011 Jun;63(6):1377-402.
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Science and the information society.科学与信息社会。
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Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective.生物医学研究中的数据存储与DNA库建设:知情同意、保密性、质量问题、所有权、利益返还。专业视角。
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引用本文的文献

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Perspectives for Clinical Translation of Adipose Stromal/Stem Cells.脂肪基质/干细胞的临床转化前景
Stem Cells Int. 2019 May 2;2019:5858247. doi: 10.1155/2019/5858247. eCollection 2019.
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Research Translation and Emerging Health Technologies: Synthetic Biology and Beyond.研究转化与新兴健康技术:合成生物学及其他
Health Care Anal. 2018 Dec;26(4):310-325. doi: 10.1007/s10728-016-0334-2.
3
StemBANCC: Governing Access to Material and Data in a Large Stem Cell Research Consortium.StemBANCC:在大型干细胞研究联盟中管理材料和数据的访问权限。
Stem Cell Rev Rep. 2015 Oct;11(5):681-7. doi: 10.1007/s12015-015-9599-3.
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The global intellectual property landscape of induced pluripotent stem cell technologies.诱导多能干细胞技术的全球知识产权格局。
Nat Biotechnol. 2014 Aug;32(8):742-8. doi: 10.1038/nbt.2975.
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Patents and misplaced angst: lessons for translational stem cell research from genomics.专利与错位的焦虑:基因组学对转化干细胞研究的启示。
Cell Stem Cell. 2013 May 2;12(5):508-12. doi: 10.1016/j.stem.2013.04.015.
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Specimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consent.诱导多能干细胞研究的标本采集:协调知情同意书的方法。
Stem Cells Transl Med. 2012 May;1(5):409-21. doi: 10.5966/sctm.2012-0029. Epub 2012 May 8.
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Intravenous renal cell transplantation for rats with acute and chronic renal failure.静脉内肾细胞移植治疗急性和慢性肾衰竭大鼠。
Am J Physiol Renal Physiol. 2012 Aug 1;303(3):F357-65. doi: 10.1152/ajprenal.00680.2011. Epub 2012 May 16.
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Access to human embryonic stem cell lines.人类胚胎干细胞系的获取。
Nat Biotechnol. 2011 Dec 8;29(12):1079-81. doi: 10.1038/nbt.2029.
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Research ethics: Treat donors as partners in biobank research.研究伦理:将捐赠者视为生物样本库研究的合作伙伴。
Nature. 2011 Oct 19;478(7369):312-3. doi: 10.1038/478312a.
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From banking to international governance: fostering innovation in stem cell research.从银行业到国际治理:促进干细胞研究的创新。
Stem Cells Int. 2011;2011:498132. doi: 10.4061/2011/498132. Epub 2011 Sep 5.