Department of Nursing, Obstetrics-Gynecology, Pediatrics and Psychiatry, Universidad Rey Juan Carlos, Madrid, Spain.
J Clin Nurs. 2011 Jul;20(13-14):2003-13. doi: 10.1111/j.1365-2702.2010.03508.x. Epub 2011 Mar 1.
The implantation of defibrillators should not be studied simply on the basis of clinical improvement or quality of life: it is also important to understand the significance, which the recipients attach to the defibrillator and their experiences with it. The aim of this work was, therefore, to determine the experience of Spanish implantable defibrillator recipients.
A qualitative phenomenological study.
Purposeful sampling of male implantable defibrillator recipients older than 18 years of age attended at the defibrillator consultancy at the Hospital Fuenlabrada or belonging to the Heart Patients' Association (Asociación de Pacientes Coronarios, APACOR). A secondary, theoretical sampling was also carried out to gain a more in-depth understanding of certain aspects identified in the first sampling, such as living with the discharges and difficulties during sexual activity. Data were collected using unstructured and semi-structured questionnaires and applying a question guide, field notes and the recipients' personal diaries/letters. Data collection was terminated once theoretical saturation was reached. Data were analysed using the Giorgi method. Finally, the seven themes, which showed what it means to be an implantable cardioverter-defibrillator recipient, were described.
The defibrillator is perceived positively and is considered to be a form of life insurance, whereas the discharges are a limiting factor. The recipient's outlook on life changes. Acceptance of the changes resulting from the implant leads to the development of strategies to facilitate everyday life.
An understanding of the significance attached by recipients to their disease, diagnosis and treatment allows their behaviour and expectations to be understood.
Provide the basis for nursing assessment after discharge, understand the effects of the device in the recipient and track the process of adapting the recipient to daily life.
除了研究临床改善或生活质量外，还应关注患者对除颤器的重视程度及其使用体验，不应单纯地研究植入除颤器的问题。因此，本研究旨在评估西班牙植入式除颤器患者的体验。
定性现象学研究。
选择在富恩拉夫拉达医院或心脏患者协会（Asociación de Pacientes Coronarios，APACOR）接受除颤器咨询的年龄大于 18 岁的男性植入式除颤器患者进行目的性抽样。此外，还进行了二次理论抽样，以更深入地了解首次抽样中确定的某些方面，如适应放电和性生活困难。使用非结构化和半结构化问卷以及问题指南、现场记录和患者的个人日记/信件收集数据。一旦达到理论饱和度，即停止数据收集。使用 Giorgi 方法对数据进行分析。最后，描述了七个主题，这些主题展示了作为植入式心脏复律除颤器患者的意义。
除颤器被认为是一种生命保险，患者对其持积极态度，但放电是一个限制因素。患者的人生观发生了变化。对植入带来的变化的接受，导致了日常生活中策略的发展。
了解患者对疾病、诊断和治疗的重视程度，可以帮助理解他们的行为和期望。
为出院后的护理评估提供依据，了解设备对患者的影响，并跟踪患者适应日常生活的过程。
