Consultant Paediatric Hepatologist, Birmingham Children's Hospital, West Midlands B4 6NH, United Kingdom.
Clin Nutr. 2011 Aug;30(4):499-502. doi: 10.1016/j.clnu.2011.02.003. Epub 2011 Mar 8.
BACKGROUND & AIMS: The demand for home parenteral nutrition (HPN) services for children has risen over the past 20 years. To plan a strategy for delivery of care at regional level, we carried out a national point prevalence survey of HPN during February 2010.
Paediatric gastroenterologists in 33 hospitals known to have provided HPN services were identified from their membership of the British Society of Paediatric Gastroenterology, Hepatology and Nutrition and participation in the British Intestinal Failure Survey (BIFS). Anonymised data were collated by the BIFS administrator and results compared with a similar study performed by the British Paediatric Surveillance Unit in 1993. Trends in underlying diagnosis were explored using the BIFS database for 2006-2009.
139 children on HPN were reported; a fourfold increase since 1993; six of these were older than 16 years. The regional point prevalence of HPN varied from 1.76 to 41.4 per million, with a mean of 13.7 patients per million. Short bowel syndrome had increased from 27% to 63% of cases.
The large overall increase in numbers of HPN patients suggests that a national strategy needs to be developed for the management of chronic IF.
在过去的 20 年中，儿童家庭肠外营养（HPN）服务的需求不断增加。为了制定区域性护理服务策略，我们于 2010 年 2 月对 HPN 进行了全国性的时点患病率调查。
从英国儿科学胃肠病学、肝脏病学和营养学学会（British Society of Paediatric Gastroenterology, Hepatology and Nutrition）的会员以及参与英国肠衰竭调查（British Intestinal Failure Survey，BIFS）的医院中确定了 33 家已知提供 HPN 服务的儿科胃肠病学家。匿名数据由 BIFS 管理员收集，并与英国儿科监测单位（British Paediatric Surveillance Unit）于 1993 年进行的类似研究进行了比较。使用 2006-2009 年的 BIFS 数据库探讨了基础诊断的趋势。
报告了 139 名接受 HPN 的儿童；与 1993 年相比增加了四倍；其中 6 名儿童年龄超过 16 岁。HPN 的区域时点患病率从每百万人口 1.76 例到 41.4 例不等，平均每百万人口 13.7 例。短肠综合征的病例从 27%增加到 63%。
HPN 患者数量的大幅增加表明需要制定一项全国性的慢性 IF 管理策略。
