一名患有 18 三体综合征和室间隔缺损的婴儿。
An infant with trisomy 18 and a ventricular septal defect.
机构信息
Department of Pediatrics, University of Montreal, Montreal, Quebec, Canada.
出版信息
Pediatrics. 2011 Apr;127(4):754-9. doi: 10.1542/peds.2010-1971. Epub 2011 Mar 14.
PMID:21402635
Abstract
Decisions for critically ill infants with trisomy 18 raise thorny issues about values, futility, the burdens of treatment, cost-effectiveness, and justice. We presented the case of an infant with trisomy 18 to 2 neonatologists with experience in clinical ethics, Annie Janvier and Felix Okah, and to a parent, Barbara Farlow. They do not agree about the right thing to do.
摘要
对于患有 18 三体综合征的重症婴儿，决策涉及价值观、无效性、治疗负担、成本效益和公正等棘手问题。我们向两位有临床伦理经验的新生儿科医生 Annie Janvier 和 Felix Okah 以及一位家长 Barbara Farlow 介绍了一例 18 三体综合征婴儿的病例。他们对正确的做法存在分歧。
Zotero 插件