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首次使用轮椅对社会参与的感知影响。

Perceived impacts of a first wheelchair on social participation.

作者信息

Rousseau-Harrison Kate, Rochette Annie, Routhier François, Dessureault Danielle, Thibault François, Cote Odile

机构信息

School of Rehabilitation, University of Montreal, Montréal, Québec, Canada.

出版信息

Disabil Rehabil Assist Technol. 2012;7(1):37-44. doi: 10.3109/17483107.2011.562957. Epub 2011 Mar 29.

Abstract

PURPOSE

To document perceived impacts in users' daily activities and social roles (social participation) following the acquisition of a first manual or powered wheelchair.

METHODS

A qualitative design with a phenomenological approach was used. Semi-structured interviews were conducted. An interview guide was developed based on the 12 social participation categories in the Disability Creation Process (DCP) conceptual model as themes underlying the questions: 'What has changed in your daily life since you got your new wheelchair?' and 'What has not changed in your daily life that you thought you would do differently with your new wheelchair?'

RESULTS AND DISCUSSION

The average age of the ten participants was 64.3 years (±16.3) and 90% had received a manual wheelchair. Four main themes emerged from the detailed analysis: changes in daily activities, expectations not met, impacts on social roles and emotional changes. The participants considered the changes in daily activities to be generally positive. Expectations not met mainly related to outdoor mobility. The participants had not anticipated the impacts on social roles and emotional changes, which demonstrate the complexity of human occupation.

CONCLUSION

Getting a wheelchair is a major and complex event in a person's life.

摘要

目的

记录使用者在获得第一辆手动或电动轮椅后,其日常活动和社会角色(社会参与)所感受到的影响。

方法

采用具有现象学方法的定性设计。进行了半结构化访谈。基于残疾创造过程(DCP)概念模型中的12个社会参与类别制定了访谈指南,作为问题的潜在主题:“自从你有了新轮椅后,你的日常生活有哪些变化?”以及“你的日常生活中有哪些没有改变,而你原本认为有了新轮椅会有所不同的?”

结果与讨论

10名参与者的平均年龄为64.3岁(±16.3),90%的人收到了手动轮椅。详细分析得出四个主要主题:日常活动的变化、未满足的期望、对社会角色的影响以及情绪变化。参与者认为日常活动的变化总体上是积极的。未满足的期望主要与户外出行有关。参与者没有预料到对社会角色和情绪变化的影响,这表明人类活动的复杂性。

结论

获得轮椅是一个人生活中的重大且复杂的事件。

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