Triangle Aphasia Project, Apex, NC, USA.
Top Stroke Rehabil. 2011 Mar-Apr;18(2):134-8. doi: 10.1310/tsr1802-134.
The theme of this article focuses on the survivors' ability to participate in life as fully as they choose and the way in which individuals in those persons' lives can support this objective. A description of how the adult onset of communication disorders can affect self-image and self-identity is provided. Persons with aphasia are encouraged to consider various issues: What do individuals have control over at each level of their recovery versus what choices are made for them? What communicative power do individuals have and what environmental barriers are at play? Variables that define dignity along each stage of recovery are outlined. This thematic impression is supported by my recent experience with my mother who suffered a stroke with aphasia. It can be a challenge to translate the philosophical basis for professional work into a personal relationship. However, many lessons about dignity and empathy are gleaned from the experience.
本文的主题集中在幸存者能够充分选择参与生活的能力,以及生活在这些人生命中的个体可以支持这一目标的方式。本文还描述了成人期沟通障碍如何影响自我形象和自我认同。本文鼓励失语症患者考虑以下问题:在恢复的每个阶段,个人可以控制哪些方面,而哪些选择是为他们做出的?个人有哪些沟通能力,以及有哪些环境障碍在起作用?本文还概述了在恢复的每个阶段定义尊严的变量。这一主题印象是基于我最近与患有失语症的母亲的经历。将专业工作的哲学基础转化为个人关系可能是一个挑战。然而,从这种经历中可以汲取到许多关于尊严和同理心的经验。