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患者对治疗方案、生存护理计划、教育及支持服务的偏好。

Patient preferences concerning treatment plans, survivorship care plans, education, and support services.

作者信息

Marbach Tiffany J, Griffie Julie

机构信息

Clinical Cancer Center, Froedtert Hospital and the Medical College of Wisconsin, Milwaukee, USA.

出版信息

Oncol Nurs Forum. 2011 May;38(3):335-42. doi: 10.1188/11.ONF.335-342.

Abstract

PURPOSE/OBJECTIVES: To examine patient preferences for content and methods of delivering treatment plans, educational information, and survivorship care plans.

RESEARCH APPROACH

Thematic analysis of four tape-recorded focus groups of cancer survivors.

SETTING

An outpatient clinical cancer center in an academic medical center in the midwestern United States.

PARTICIPANTS

40 cancer survivors who had completed initial treatment. Participants were grouped by disease site: (a) prostate, genitourinary, and skin; (b) breast and gynecologic; (c) gastrointestinal, sarcoma, and head and neck; and (d) brain, pancreas, and lung.

METHODOLOGIC APPROACH

An exploratory, descriptive approach with in-depth focus group thematic and comparative analysis methodology. The data are grouped into four major, interconnected themes.

MAIN RESEARCH VARIABLES

Survivors' personal experiences with receiving cancer treatment.

FINDINGS

Four categories were agreed on using thematic analysis: educational information, treatment plan, survivorship care plan, and patient support. Themes were identified within each category.

CONCLUSIONS

The number of cancer survivors continues to grow each year. Approaching each survivor with individualized educational information, an initial treatment plan, a survivorship care plan, and emotional support is imperative. Oncology nurses must assess cancer survivors for their unique needs and intervene accordingly.

INTERPRETATION

Because oncology nurses assess and recognize the learning needs of each patient, they are best positioned to develop teaching content, strategies, and timing of interventions. The importance of written educational materials cannot be negated. Oncology nurses also are well positioned to provide a proactive role in the development and delivery of treatment and survivorship plans of care.

摘要

目的/目标:研究患者对治疗计划、教育信息及生存护理计划的内容和传递方式的偏好。

研究方法

对四个癌症幸存者焦点小组的录音进行主题分析。

研究地点

美国中西部一所学术医疗中心的门诊临床癌症中心。

参与者

40名已完成初始治疗的癌症幸存者。参与者按疾病部位分组:(a)前列腺、泌尿生殖系统和皮肤;(b)乳腺和妇科;(c)胃肠道、肉瘤和头颈;(d)脑、胰腺和肺。

方法学方法

采用探索性、描述性方法,结合深入的焦点小组主题和比较分析方法。数据分为四个主要的相互关联主题。

主要研究变量

幸存者接受癌症治疗的个人经历。

研究结果

通过主题分析确定了四个类别:教育信息、治疗计划、生存护理计划和患者支持。每个类别中都确定了主题。

结论

癌症幸存者的数量每年都在持续增加。为每位幸存者提供个性化的教育信息、初始治疗计划、生存护理计划和情感支持至关重要。肿瘤护理人员必须评估癌症幸存者的独特需求并据此进行干预。

解读

由于肿瘤护理人员评估并认识到每位患者的学习需求,他们最有能力制定教学内容及策略,并确定干预时机。书面教育材料的重要性不可忽视。肿瘤护理人员在制定和提供治疗及生存护理计划方面也能发挥积极作用。

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