McCurdy David B, Fitchett George
Advocate Health Care, Park Ridge, Illinois 60068, USA.
J Health Care Chaplain. 2011;17(1-2):55-74. doi: 10.1080/08854726.2011.559855.
As chaplains develop richly detailed case studies for publication, ethical questions about case study construction and publication are emerging. Concerns about seeking patients' permission to publish material about them suggest additional questions and raise broad confidentiality and privacy issues. Confidentiality-related practices in health care and psychotherapy provide the most extensive guidance for chaplains, but healthcare chaplaincy has roots in religious and professional traditions with distinct notions of confidentiality that deserve consideration. Single case studies do not appear to be "research" requiring informed consent, yet their publication exposes patients to some risk of harm. Obtaining the patient's/"case study subject's" permission to publish, disguising non-essential information, and allowing the patient to review the case study can mitigate the risks. Striking a balance between protecting patients and providing sufficient detail to make case studies useful is a central ethical challenge of case study publication.
随着牧师们为出版精心撰写详细的案例研究，关于案例研究构建和出版的伦理问题逐渐浮现。在寻求患者许可以发表关于他们的材料方面存在的担忧引发了更多问题，并提出了广泛的保密和隐私问题。医疗保健和心理治疗中与保密相关的做法为牧师提供了最广泛的指导，但医疗保健牧师工作植根于具有独特保密观念的宗教和专业传统，值得加以考虑。单一案例研究似乎不属于需要知情同意的“研究”，但其发表会使患者面临一定的伤害风险。获得患者/“案例研究对象”的出版许可、掩饰非必要信息以及让患者审阅案例研究可以降低风险。在保护患者与提供足够细节以使案例研究有用之间取得平衡，是案例研究出版面临的核心伦理挑战。
