Smith G M, Carroll D, Mukherjee S, Aldridge R, Jayakumar S, McCarthy L, Chandran H, Parashar K
Birmingham Children's Hospital, Paediatric Urology, Birmingham, United Kingdom.
Eur J Pediatr Surg. 2011 Aug;21(4):263-5. doi: 10.1055/s-0031-1275748. Epub 2011 May 17.
Aim of the study was determine health care outcomes from the patients' perspective in patients reliant on Mitrofanoff catheterisation for bladder emptying.
SUBJECTS/PATIENTS: Patients over the age of 16 dependent on Mitrofanoff catheterisation for bladder emptying were asked to complete a health care outcome questionnaire, the SF-36 (®) Health Survey v2. Quality of life measures for 8 health concepts were compared against published data for the normal population.
Out of a total of 25 patients who were eligible for enrolment into our study, we were able to contact 19 patients. The norm-based score for Physical Functioning (PF=50.4), Role Physical (RP=53.8), Bodily Pain (BP=55.6), Vitality (VT=56.9), Social Functioning (SF=51.5), Role Emotional (RE=52.2), and Mental Health (MH=54.6) were all higher than those reported within the normal population (normal=50.0). Physical and mental component summary measures were higher than in the normal population. When compared against age-matched norms our patient group scored higher than the normal population for all measures except Physical Functioning (50.4 vs. 53.4) and physical component summary (51.9 vs. 53.5). The self-reported scores for Vitality, Mental Health and the mental component summary were all statistically significantly better than those seen in the age-matched control population (p<0.01).
Quality of life in patients dependent on Mitrofanoff catheterisation for bladder emptying is good. The SF-36 measures 8 major health care outcomes and in our patients these measures of health were similar to those seen in the general population, rather than the poorer outcomes reported in patients with other chronic medical conditions.
本研究旨在从患者角度确定依赖米氏导管排尿患者的医疗保健结果。
受试者/患者：年龄超过16岁、依赖米氏导管排尿的患者被要求完成一份医疗保健结果问卷，即SF-36（®）健康调查第2版。将8个健康概念的生活质量测量结果与正常人群的已发表数据进行比较。
在总共25名符合纳入本研究条件的患者中，我们能够联系到19名患者。身体功能（PF = 50.4）、角色身体（RP = 53.8）、身体疼痛（BP = 55.6）、活力（VT = 56.9）、社会功能（SF = 51.5）、角色情感（RE = 52.2）和心理健康（MH = 54.6）的基于常模的得分均高于正常人群报告的得分（正常 = 50.0）。身体和心理成分总结测量结果高于正常人群。与年龄匹配的常模相比，我们的患者组在所有测量指标上的得分均高于正常人群，但身体功能（50.4对53.4）和身体成分总结（51.9对53.5）除外。自我报告的活力、心理健康和心理成分总结得分在统计学上均显著优于年龄匹配的对照人群（p < 0.01）。
依赖米氏导管排尿患者的生活质量良好。SF-36测量8项主要医疗保健结果，在我们的患者中，这些健康测量结果与普通人群相似，而非其他慢性疾病患者报告的较差结果。
