Lara Beatriz, Morales Pilar, Blanco Ignacio, Vendrell Montserrat, de Gracia Roldán Javier, Monreal Manel, Orriols Ramón, Isidro Isabel, Abú-Shams Khalil, Escribano Pilar, Villena Victoria, Rodrigo Teresa, Vidal Plà Rafael, García-Yuste Mariano, Miravitlles Marc
Servicio de Neumología, Hospital Universitario Arnau de Vilanova, Institut de Recerca Biomédica de Lleida, Centro de Investigación Biomédica en Red de Enfermedades Respiratorias (CIBERES), Instituto de Salud Carlos III, España.
Arch Bronconeumol. 2011 Aug;47(8):389-96. doi: 10.1016/j.arbres.2011.04.002. Epub 2011 May 23.
This present paper describes the general characteristics, objectives and organizational aspects of the respiratory disease registries in Spain with the aim to report their activities and increase their diffusion. The document compiles information on the following registries: the Spanish Registry of Patients with Alpha-1 Antitrypsin Deficiency, Spanish Registry of Bronchiectasis, International Registry of Thromboembolic Disease, Spanish Registry of Occupational Diseases, Spanish Registry of Pulmonary Artery Hypertension, Registry of Pleural Mesothelioma, Spanish Registry of Tuberculosis and Spanish Multi-center Study of Neuroendocrine Pulmonary Tumors. Our paper provides information on each of the registries cited. Each registry has compiled specific clinical information providing data in real situations, and completes the results obtained from clinical assays. Said information has been published both in national as well as international publications and has lead to the creation of various guidelines. Therefore, the activities of the professionals involved in the registries have spread the knowledge about the diseases studied, promoting the exchange of information among workgroups.
本论文描述了西班牙呼吸系统疾病登记处的一般特征、目标和组织方面，旨在报告其活动并扩大其传播范围。该文件汇编了以下登记处的信息：西班牙α-1抗胰蛋白酶缺乏症患者登记处、西班牙支气管扩张症登记处、国际血栓栓塞性疾病登记处、西班牙职业病登记处、西班牙肺动脉高压登记处、胸膜间皮瘤登记处、西班牙结核病登记处以及西班牙神经内分泌肺肿瘤多中心研究。我们的论文提供了上述每个登记处的信息。每个登记处都汇编了特定的临床信息，提供实际情况下的数据，并完善了临床检测获得的结果。上述信息已在国内和国际出版物上发表，并促成了各种指南的制定。因此，登记处相关专业人员的活动传播了有关所研究疾病的知识，促进了工作组之间的信息交流。
