Department of Epidemiology, Emory University Rollins School of Public Health, Atlanta, GA 30322, USA.
J Med Ethics. 2011 Dec;37(12):768-9. doi: 10.1136/jme.2011.043976. Epub 2011 Jun 27.
As the frequency of internet-based research has increased, it is important for researchers to consider how the conditions in which data are collected may influence the risks to participants. In particular, because internet-based data collection often occurs outside a clinical or research setting, there may be unintentional disclosures of a participant's involvement in a research study of which the researcher is unaware. The current analysis examined the responses of men who have sex with men participating in an internet-based HIV behavioural risk study when queried about the possible disclosure of their participation in the study. Fewer than 2% of participants indicated that their participation in the research study was disclosed, and all but one indicated no negative outcomes associated with the disclosure. As the field of online research continues to expand, it is important to consider risks that are unique to internet-based research, and to monitor these risks to ensure that the confidentiality of research subjects is maintained.
随着基于互联网的研究频率的增加，研究人员有必要考虑数据收集的条件如何影响参与者的风险。特别是，由于基于互联网的数据收集通常发生在临床或研究环境之外，因此参与者可能会无意中披露研究人员不知道的研究参与情况。目前的分析检查了参与基于互联网的 HIV 行为风险研究的男男性接触者对其参与研究的可能披露的反应。不到 2%的参与者表示他们的研究参与被披露，除了一个人表示披露没有任何负面后果。随着在线研究领域的不断扩大，有必要考虑到基于互联网的研究特有的风险，并监测这些风险，以确保研究对象的机密性得到维护。
