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用于招募研究参与者的信息网站的开发:过程、实施与评估。

Development of an informational web site for recruiting research participants: process, implementation, and evaluation.

作者信息

Hershberger Patricia E, Kavanaugh Karen, Hamilton Rebekah, Klock Susan C, Merry Lisa, Olshansky Ellen, Pierce Penny F

机构信息

Department of Women, Children, and Family Health Science, University of Illinois at Chicago, 60612, USA.

出版信息

Comput Inform Nurs. 2011 Oct;29(10):544-51; quiz 552-3. doi: 10.1097/NCN.0b013e318224b52f.

DOI:10.1097/NCN.0b013e318224b52f
PMID:21709545
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3572203/
Abstract

Internet-based research is increasing, yet there is little known about recruitment approaches that target the Internet. Investigators have been slow to discuss how to plan, develop, and enhance recruitment using the Internet when well-concealed or disparate populations, sensitive topics, or qualitative methods are interspersed into the aims of the study. The twofold purpose of this article was to (1) highlight the major steps and strategies undertaken to develop and implement an innovative Web site for recruiting high-genetic-risk couples who were considering preimplantation genetic diagnosis use, and (2) present the recruitment results and lessons learned based on enrollment, self-evaluation, and descriptive data. The Web site was developed using a five-step process designed by the investigators. A significant step in the process was determining the Web site objectives, which were enacted through contextual and design decisions, and also by incorporating a brief video and study logo into the Web site. The recruitment results indicate that, of the 22 participant couples, ∼82% were recruited via the Internet versus traditional recruitment approaches (ie, clinics, newsletters) and that the majority of couples viewed the Web site prior to enrolling in the study. In conclusion, developing a Web site using the five-step process can facilitate recruitment.

摘要

基于互联网的研究日益增多,但针对互联网的招募方法却鲜为人知。当研究目的中穿插了隐蔽或不同的人群、敏感话题或定性方法时,研究人员在讨论如何利用互联网进行招募计划、开展和改进方面一直进展缓慢。本文的双重目的是:(1)强调为招募考虑进行植入前基因诊断的高遗传风险夫妇而开发和实施创新网站所采取的主要步骤和策略;(2)根据入组情况、自我评估和描述性数据呈现招募结果及经验教训。该网站是研究人员按照五步流程开发的。该流程中的一个重要步骤是确定网站目标,这通过背景和设计决策来实现,同时还通过在网站中加入一段简短视频和研究标志来达成。招募结果表明,在22对参与夫妇中,约82%是通过互联网而非传统招募方式(如诊所、通讯)招募的,并且大多数夫妇在参加研究之前都浏览过该网站。总之,采用五步流程开发网站有助于招募工作。

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本文引用的文献

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