Cederborg A-C, Hultman E, Magnusson K F
Department of Child and Youth Studies, Stockholm University, Stockholm, Sweden.
Child Care Health Dev. 2012 Jul;38(4):484-9. doi: 10.1111/j.1365-2214.2011.01273.x. Epub 2011 Jul 13.
This study explores how a child's coeliac disease (CD) influences the daily life of families because such knowledge can enhance the understanding of how to support family adjustment to a gluten-free diet (GFD).
We used an interpretative phenomenological approach, interviewing 20 parents of 14 children diagnosed with CD about their individual thoughts and beliefs.
Once parents know, especially when their children are young, they seem to have the capacity to rapidly adapt to GFD, mainly because they notice how quickly their children recover. Parents may have problems controlling how staff at daycare and at school complies with their information about a GFD.
To ensure that children with CD are given a GFD at daycare and school, it is necessary for municipalities to educate staff about the disease and to give them the prerequisites for serving a GFD. There is also a need of early identification of children who may have CD. When parents express their worries, not just at the hospital but also at the well-baby clinic and primary care units, supporting treatment could prevent children from suffering from inappropriate food.
本研究探讨儿童乳糜泻（CD）如何影响家庭日常生活，因为此类知识有助于增强对如何支持家庭适应无麸质饮食（GFD）的理解。
我们采用解释现象学方法，就14名被诊断患有CD的儿童的20位家长的个人想法和信念进行了访谈。
一旦家长了解情况，尤其是孩子年幼时，他们似乎有能力迅速适应无麸质饮食，主要是因为他们注意到孩子恢复得有多快。家长在控制日托机构和学校工作人员遵守其提供的无麸质饮食信息方面可能会遇到问题。
为确保日托机构和学校为患有CD的儿童提供无麸质饮食，市政当局有必要对工作人员进行该疾病的教育，并为他们提供提供无麸质饮食的先决条件。此外，还需要尽早识别可能患有CD的儿童。当家长不仅在医院，而且在母婴保健诊所和初级保健单位表达担忧时，给予支持性治疗可防止儿童摄入不适当食物。
