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皮肤银屑病或银屑病关节炎患者的参与度、满意度和知识水平。

Participation, satisfaction and knowledge level of patients with cutaneous psoriasis or psoriatic arthritis.

机构信息

Epidemiology Unit, Istituto Dermopatico dell'Immacolata (IDI-IRCCS), Rome, Italy.

出版信息

Clin Exp Dermatol. 2011 Dec;36(8):885-8. doi: 10.1111/j.1365-2230.2011.04126.x. Epub 2011 Jul 25.

Abstract

There have been few studies about the participation in health care and the satisfaction of patients with psoriasis and with psoriatic arthritis. The objective of this study was to examine the attitudes of and satisfaction with decision-making of patients with psoriasis. The study was based on a self-completed questionnaire, given after a routine medical visit to a consecutive sample of 240 patients with psoriasis [207 with cutaneous psoriasis (CP) and 33 with psoriatic arthritis (PA)]. Of the patients with CP and PA, only about a third (27.3% and 28.1%, respectively) preferred to leave decisions entirely to their doctor, whereas the majority (72.7% and 71.9%, respectively) wanted to be involved in decision-making. However, the level of knowledge about the disease was not as high, with 17.0% and 21.4% of patient with CP and PA, respectively, having a good level of knowledge about psoriasis treatment. Participation, knowledge and overall satisfaction were not significantly different between patients with CP and those with PA. Information on treatment side-effects (OR = 5.11; 95% CI 2.5-15.0; P < 0.001) and information on treatment options (OR = 3.15; 95% CI 1.4-7.1; P = 0.006) were significantly associated with overall patient satisfaction.

摘要

关于参与医疗保健和银屑病及银屑病关节炎患者的满意度,已有少量研究。本研究的目的是研究银屑病患者对决策的态度和满意度。该研究基于对连续样本 240 名银屑病患者(207 名患有皮肤银屑病(CP)和 33 名患有银屑病关节炎(PA))进行的常规医疗就诊后,完成的自我填写问卷。CP 和 PA 患者中,只有约三分之一(分别为 27.3%和 28.1%)希望完全由医生做出决策,而大多数(分别为 72.7%和 71.9%)希望参与决策。然而,对疾病的了解程度并不高,CP 和 PA 患者中分别有 17.0%和 21.4%对银屑病治疗有较好的了解。CP 和 PA 患者的参与度、知识水平和总体满意度无显著差异。治疗副作用信息(OR=5.11;95%CI 2.5-15.0;P<0.001)和治疗选择信息(OR=3.15;95%CI 1.4-7.1;P=0.006)与患者总体满意度显著相关。

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