Komarahadi Fely L, Ruf Daniela, Hüll Michael, Härter Martin
Abteilung für Psychiatrie und Psychotherapie, Universitätsklinikum Freiburg.
Psychiatr Prax. 2012 Jan;39(1):34-9. doi: 10.1055/s-0031-1276837. Epub 2011 Jul 27.
Despite the demographically driven rapid growth of the number of persons with dementia, in Germany a website is lacking that provides evidence based information about the disease, its burden and therapeutic options to family and professional carers as well as physicians. A website was developed with the objective to give free access to evidence based information concerning the disease and care for patients with dementia.
In order to meet the expectations of the user groups an analysis of information needs was performed with 80 physicians, 163 professional carers and 104 family carers.
All user groups rated information on symptoms, course and treatment of dementia and support for family carers as important topics. Group differences were found for the need to be informed on financial support, daily care and interaction with patients.
The contents of the website will be accommodated to the specific needs of the user groups.
尽管受人口结构影响，痴呆症患者人数迅速增长，但在德国，仍缺乏一个能为家庭护理人员、专业护理人员以及医生提供关于该疾病、其负担及治疗选择的循证信息的网站。开发了一个网站，目的是免费提供有关该疾病及痴呆症患者护理的循证信息。
为满足用户群体的期望，对80名医生、163名专业护理人员和104名家庭护理人员进行了信息需求分析。
所有用户群体都将有关痴呆症的症状、病程和治疗以及对家庭护理人员的支持等信息视为重要主题。在经济支持、日常护理以及与患者互动方面的信息需求上发现了群体差异。
网站内容将根据用户群体的特定需求进行调整。
