Department of Endocrinology and Diabetes, Centre for Hormone Research, Murdoch Children’s Research Institute, Royal Children’s Hospital, Melbourne, Australia.
J Health Psychol. 2012 Apr;17(3):313-23. doi: 10.1177/1359105311415559. Epub 2011 Jul 28.
Few qualitative studies have examined the views of adolescents with type 1 diabetes mellitus (T1DM) regarding psychosocial programme development and content. We conducted focus groups with 13 adolescents with T1DM to explore stressors and gain feedback on adapting a generic coping skills programme. The following prevalent stressors were identified: parental/adolescent conflict, balancing self-management and daily life, and health concerns. Prevalent views on programme adaptation included enhancing social support and adding diabetes-specific information and skills. Based on these data, the programme was adapted to address stressors and support self-management, thus better meeting the needs of, and appeal to, adolescents with T1DM.
鲜有定性研究探讨过青少年 1 型糖尿病（T1DM）患者对于心理社会项目发展和内容的看法。我们对 13 名 T1DM 青少年进行了焦点小组讨论，以探索压力源，并就调整通用应对技能方案提供反馈。确定了以下普遍存在的压力源：父母/青少年冲突、平衡自我管理和日常生活以及健康问题。关于方案调整的普遍观点包括增强社会支持以及添加糖尿病特定信息和技能。基于这些数据，方案进行了调整以应对压力源并支持自我管理，从而更好地满足青少年 T1DM 患者的需求并引起他们的兴趣。
