Shaw Liz, Moore Darren, Nunns Michael, Thompson Coon Jo, Ford Tamsin, Berry Vashti, Walker Erin, Heyman Isobel, Dickens Christopher, Bennett Sophie, Shafran Roz, Garside Ruth
University of Exeter Medical School, Exeter, UK.
Graduate School of Education, University of Exeter, Exeter, UK.
Child Care Health Dev. 2019 Nov;45(6):832-849. doi: 10.1111/cch.12708. Epub 2019 Aug 16.
Children and young people with long-term physical health conditions are at increased risk of experiencing mental health and well-being difficulties. However, there is a lack of research that explores the experiences of and attitudes towards interventions aiming to improve their mental health and well-being. This systematic review seeks to address this gap in the literature by exploring what children and young people with long-term conditions, their caregivers, and health practitioners perceive to be important aspects of interventions aiming to improve their mental health and well-being.
An information specialist searched five academic databases using predefined criteria for qualitative evaluations of interventions aiming to improve the mental health or well-being of children with long-term physical conditions. Reviewers also performed supplementary citation and grey literature searches. Two reviewers independently screened titles, abstracts, and full texts that met the inclusion criteria and conducted data extraction and quality assessment. Meta-ethnography was used to synthesize the findings.
Screening identified 60 relevant articles. We identified five overarching constructs through the synthesis: (a) Getting In and Staying In, (b) Therapeutic Foundation, (c) Social Support, (d) A Hopeful Alternative, and (e) Empowerment. The line of argument that links these constructs together indicates that when interventions can provide an environment that allows young people to share their experiences and build empathetic relationships, it can enable participants to access social support and increase feelings of hope and empowerment.
These findings may provide a framework to inform the development of mental health interventions for this population and evaluate existing interventions that already include some of the components or processes identified by this research. Further research is needed to establish which of the constructs identified by the line of argument are most effective in improving the mental well-being of young people living with long-term conditions.
患有长期身体健康问题的儿童和年轻人出现心理健康和幸福感问题的风险增加。然而，缺乏对旨在改善他们心理健康和幸福感的干预措施的体验和态度的研究。本系统综述旨在通过探索患有长期疾病的儿童和年轻人、他们的照顾者以及健康从业者认为旨在改善他们心理健康和幸福感的干预措施的重要方面，来填补文献中的这一空白。
一名信息专家使用针对旨在改善患有长期身体疾病儿童心理健康或幸福感的干预措施的定性评估的预定义标准，搜索了五个学术数据库。评审人员还进行了补充引文和灰色文献搜索。两名评审人员独立筛选符合纳入标准的标题、摘要和全文，并进行数据提取和质量评估。采用元民族志方法对研究结果进行综合分析。
筛选出60篇相关文章。通过综合分析，我们确定了五个总体结构：（a）参与并持续参与，（b）治疗基础，（c）社会支持，（d）充满希望的选择，以及（e）赋权。将这些结构联系在一起的论证思路表明，当干预措施能够提供一个让年轻人分享他们的经历并建立同理心关系的环境时，它可以使参与者获得社会支持，并增加希望感和赋权感。
这些发现可能为为这一人群制定心理健康干预措施以及评估已经包含本研究确定的一些组成部分或过程的现有干预措施提供一个框架。需要进一步的研究来确定论证思路中确定的哪些结构在改善患有长期疾病的年轻人的心理健康方面最有效。
