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继续生活:脊髓损伤患者的积极生活体验。

Getting on with life: positive experiences of living with a spinal cord injury.

机构信息

University of Toronto, Toronto, Ontario, Canada.

出版信息

Qual Health Res. 2011 Nov;21(11):1455-68. doi: 10.1177/1049732311417726. Epub 2011 Aug 16.

Abstract

Currently, the dominant cultural beliefs toward disability are negative, and the existing literature is limited with respect to examining how people are using and/or viewing their disabilities positively. The purpose of this study was to identify how individuals living with a spinal cord injury (SCI) viewed and/or used their disability positively, and what contextual influences facilitated this positive approach. This study was a secondary analysis of qualitative data from a larger study. The findings revealed three levels at which disability was viewed and/or used positively by people with SCI: self, peers, and disability community. In addition, several aspects of the participants' situations were found to facilitate this positive view and/or use of disability: personality, spirituality, support systems, and acceptance of one's disability. The findings reveal that individuals with SCI are viewing and/or using their disabilities positively in many different ways. This study has significant implications for the direction of future research and for health care professionals who need to increase their advocacy and facilitating roles.

摘要

目前,主流的残疾文化观念是负面的,而且现有文献在研究人们如何积极地看待和/或利用自身残疾方面也很有限。本研究旨在确定患有脊髓损伤(SCI)的个体如何积极地看待和/或利用自身残疾,以及哪些环境因素促进了这种积极的方法。本研究是对一项更大规模研究的定性数据进行的二次分析。研究结果显示,SCI 患者从三个层面积极看待和/或利用残疾:自身、同伴和残疾群体。此外,还发现参与者的一些情况有助于他们积极地看待和/或利用残疾:个性、精神信仰、支持系统和对自身残疾的接受。研究结果表明,SCI 患者以多种不同的方式积极地看待和/或利用自身残疾。本研究对未来研究的方向和需要增强倡导和促进作用的医疗保健专业人员具有重要意义。

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