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2
Sickle cell anaemia: awareness among health professionals and medical students at the Lagos University Teaching Hospital, Lagos.镰状细胞贫血:拉各斯大学教学医院(位于拉各斯)的医护人员和医学生对其的认知情况
Nig Q J Hosp Med. 2009 Sep-Dec;19(4):195-9. doi: 10.4314/nqjhm.v19i4.54524.
3
Mortality of children with sickle cell disease: a population study.镰状细胞病患儿的死亡率:一项人群研究。
J Pediatr (Rio J). 2010 Jul-Aug;86(4):279-84. doi: 10.2223/JPED.2005. Epub 2010 May 27.
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A pilot study to explore knowledge, attitudes, and beliefs about sickle cell trait and disease.一项探索关于镰状细胞特质和疾病的知识、态度和信念的初步研究。
J Natl Med Assoc. 2009 Nov;101(11):1163-72. doi: 10.1016/s0027-9684(15)31113-5.
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[Knowledge of sickle cell disease and prevention methods in an urban district of Lomé, Togo].[多哥洛美一个城区的镰状细胞病知识及预防方法]
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Raising awareness of carrier testing for hereditary haemoglobinopathies in high-risk ethnic groups in the Netherlands: a pilot study among the general public and primary care providers.提高荷兰高危少数民族中遗传性血红蛋白病携带者检测的意识:普通公众和初级保健提供者的试点研究。
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7
Acute splenic sequestration in a cohort of children with sickle cell anemia.镰状细胞贫血患儿群体中的急性脾脏隔离症。
J Pediatr (Rio J). 2009 Mar-Apr;85(2):163-9. doi: 10.2223/JPED.1885.
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Compliance with antibiotic prophylaxis in children with sickle cell anemia: a prospective study.镰状细胞贫血患儿抗生素预防治疗的依从性:一项前瞻性研究。
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Clinical outcomes in children with sickle cell disease living in England: a neonatal cohort in East London.生活在英格兰的镰状细胞病患儿的临床结局:东伦敦的一个新生儿队列研究
Haematologica. 2007 Jul;92(7):905-12. doi: 10.3324/haematol.10937.
10
American Academy of Pediatrics Newborn Screening Task Force recommendations: how far have we come?美国儿科学会新生儿筛查特别工作组的建议:我们已经取得了多大进展?
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巴西家庭健康计划从业者对镰状细胞病的认知:一项描述性、横断面研究。

Knowledge of family health program practitioners in Brazil about sickle cell disease: a descriptive, cross-sectional study.

机构信息

Department of Nursing, State University of Montes Claros, Minas Gerais, Brazil.

出版信息

BMC Fam Pract. 2011 Aug 19;12:89. doi: 10.1186/1471-2296-12-89.

DOI:10.1186/1471-2296-12-89
PMID:21854618
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3179714/
Abstract

BACKGROUND

Although sickle cell disease is an important public health problem in Brazil, there is a gap in the literature on the level of knowledge of primary health care professionals about the treatment and management of sickle cell disease. Therefore, this study aimed to evaluate the level of knowledge about sickle cell disease of physicians and nurses who work in the Family Health Program in a region of Brazil with a high prevalence of this disease.

METHODS

This is a descriptive, cross-sectional study conducted at the municipality of Montes Claros, in the north of Minas Gerais, Brazil. Study participants included 96 physicians and nurses who work at the Family Health Program in an urban area of the city. Data was collected using an original, partially tested questionnaire based on health care check points for children with sickle cell disease established in educational protocols from the State Health Secretary of Minas Gerais and the Ministry of Health. The structured questionnaire contained 47 questions addressing three axes: epidemiology (8 questions); clinical manifestations (13 questions); and management of children with sickle cell disease (26 questions). Knowledge was measured through mean correct responses to proposed questions. Ethical principles were respected and this project was approved by the Committee of Ethics in Research.

RESULTS

59.4% (57) of the study participants were nurses and 40.6% (39) were physicians. The median length of training and median length of service in primary health care were 4.3 (2.8-8.0) years and 4.0 (2.0-7.1) years, respectively. The mean performance in knowledge tests was < 75%, with 5.7/8 (SD = 1.4) for the "epidemiology" questions; 8.6/13 (SD = 2.2) for "clinical manifestations"; and 17.0/26 (SD = 2.9) for "management of children with sickle cell disease" questions; resulting in a mean total of 31.4/47 (SD = 5.10) correct responses. A statistically significant association was found between the number of correct responses and family health care qualifications (p = 0.015).

CONCLUSION

There is an urgent need to improve primary health care professional training in the care of children with sickle cell disease.

摘要

背景

尽管镰状细胞病是巴西的一个重要公共卫生问题,但初级保健专业人员对镰状细胞病治疗和管理的知识水平方面的文献仍存在空白。因此,本研究旨在评估在巴西一个镰状细胞病高发地区工作的家庭健康计划中的医生和护士对镰状细胞病的知识水平。

方法

这是一项在巴西米纳斯吉拉斯州北部蒙蒂斯克拉鲁斯市进行的描述性、横断面研究。研究参与者包括在该市城区的家庭健康计划中工作的 96 名医生和护士。数据是使用原始的、部分经过测试的问卷收集的,该问卷基于米纳斯吉拉斯州和卫生部制定的儿童镰状细胞病保健检查点的教育协议。结构化问卷包含 47 个问题,涉及三个轴:流行病学(8 个问题);临床表现(13 个问题);和镰状细胞病儿童的管理(26 个问题)。知识通过对提出的问题的平均正确回答来衡量。尊重伦理原则,该项目获得了研究伦理委员会的批准。

结果

研究参与者中 59.4%(57 人)为护士,40.6%(39 人)为医生。培训的中位数长度和初级保健服务的中位数长度分别为 4.3(2.8-8.0)年和 4.0(2.0-7.1)年。知识测试的平均表现低于 75%,其中“流行病学”问题为 5.7/8(SD = 1.4);“临床表现”为 8.6/13(SD = 2.2);“镰状细胞病儿童管理”问题为 17.0/26(SD = 2.9);总分为 31.4/47(SD = 5.10)正确答案。正确答案的数量与家庭保健资格之间存在统计学显著关联(p = 0.015)。

结论

迫切需要提高初级保健专业人员对镰状细胞病儿童护理的培训。