Lloyd-Puryear Michele A, Tonniges Thomas, van Dyck Peter C, Mann Marie Y, Brin Amy, Johnson Kay, McPherson Merle
Health Resources and Services Administration, Rockville, MD 20857, USA.
Pediatrics. 2006 May;117(5 Pt 2):S194-211. doi: 10.1542/peds.2005-2633B.
The partnership of the Health Resources and Services Administration (HRSA)/Maternal and Child Health Bureau (MCHB) and the American Academy of Pediatrics (AAP) for improving health care for all children has long been recognized. In 1998, the establishment of the Newborn Screening Task Force marked a major initiative in addressing the needs of the newborn screening system. At the request of HRSA/MCHB, the AAP convened the task force to ensure that pediatric clinicians assumed a leadership role in examining the totality of the newborn screening system, including the necessary linkage to medical homes. The task force's report, published in 2000, outlined major recommendations for federal, state, and other national partners in addressing the identified barriers and needed enhancements of the care delivery system. Today, manifestations of the task force's recommendations are evident, many of which occurred under the leadership of HRSA/MCHB and the AAP. These activities are detailed in this article, with a discussion of future progression toward a quality, consistent, coordinated system of care for children identified with positive newborn screening results, their families, and the child health professionals who care for them.
卫生资源与服务管理局（HRSA）/母婴健康局（MCHB）与美国儿科学会（AAP）为改善所有儿童医疗保健而建立的伙伴关系早已得到认可。1998年，新生儿筛查特别工作组的成立标志着在满足新生儿筛查系统需求方面迈出了一项重大举措。应HRSA/MCHB的要求，AAP召集了该特别工作组，以确保儿科临床医生在审视新生儿筛查系统整体情况（包括与医疗之家的必要联系）方面发挥领导作用。特别工作组于2000年发表的报告，为联邦、州及其他国家合作伙伴提出了主要建议，以应对已发现的障碍并改进医疗服务提供系统。如今，特别工作组建议的成果显而易见，其中许多是在HRSA/MCHB和AAP的领导下实现的。本文详细介绍了这些活动，并讨论了未来如何朝着为新生儿筛查结果呈阳性的儿童及其家庭以及照顾他们的儿童健康专业人员建立一个高质量、一致且协调的医疗保健系统发展。
