Australian Primary Health Care Research Institute, Level 1, Ian Potter House, Australian National University, Corner of Gordon and Marcus Clarke Streets, Acton, ACT 0200, Australia. Michelle.Banfi
Aust N Z J Psychiatry. 2011 Dec;45(12):1078-85. doi: 10.3109/00048674.2011.624084. Epub 2011 Oct 29.
The aim of this study was to identify consumer priorities for research on depression and bipolar disorder in Australia.
Australian consumers with personal experience of depression or bipolar disorder were surveyed online about research priorities for their condition using a questionnaire developed from an earlier qualitative phase of the SCOPE for Research project. Participants were asked to rate the importance of a number of broad research areas, specific research topics, target groups and settings in which to conduct research. These ratings were then compared to the content of relevant Australian research published between 1997 and 2006.
Consumers rated research into the management and treatment of depression and bipolar disorder of highest priority. Further, consumers rated those at risk of a mood disorder as the most important target groups for research and prioritized research conducted in health settings such as community mental health services ahead of research in other settings. There was some concordance between consumers' ratings of the broad topic areas and settings in which to conduct research and the amount of published research on these topic areas and settings. However, there was little published research on the highest ranked consumer-rated specific topics and target groups for research.
Overall, there were substantial differences between the priorities of consumers and the recent research output, suggesting gaps in the Australian research base on mood disorders. The results of this study should be used to inform future research to ensure that it is guided by the priorities of the ultimate beneficiaries of the research, mental health consumers.
本研究旨在确定澳大利亚消费者对抑郁症和双相情感障碍研究的优先事项。
通过问卷调查，对有抑郁症或双相情感障碍个人经历的澳大利亚消费者进行在线调查，了解他们对自身疾病的研究优先事项。该问卷是基于 SCOPE for Research 项目的早期定性阶段开发的。参与者被要求对一系列广泛的研究领域、特定的研究主题、目标群体和研究开展地点的重要性进行评分。然后，将这些评分与 1997 年至 2006 年间发表的澳大利亚相关研究的内容进行比较。
消费者将抑郁症和双相情感障碍的管理和治疗研究评为优先级最高的研究。此外，消费者将处于情绪障碍风险中的人群评为最重要的研究目标群体，并优先考虑在社区心理健康服务等卫生环境中开展研究，而不是在其他环境中开展研究。消费者对广泛的研究主题领域和开展研究的地点的评分与这些主题领域和地点的已发表研究数量之间存在一定的一致性。然而，在消费者评分最高的特定研究主题和目标群体方面，发表的研究却很少。
总体而言，消费者的优先事项与最近的研究成果之间存在很大差异，这表明澳大利亚在情绪障碍研究方面存在差距。本研究的结果应被用于指导未来的研究，以确保研究由研究的最终受益者，即心理健康消费者来指导。
