Underhill Meghan L, Dickerson Suzanne S
Phyllis F Cantor Center for Research in Nursing and Patient Care Services, Dana-Farber Cancer Institute, School of Nursing, University of Massachusetts, Boston, USA.
Oncol Nurs Forum. 2011 Nov;38(6):686-94. doi: 10.1188/11.ONF.686-694.
PURPOSE/OBJECTIVES: To explore how women with a hereditary risk of breast cancer experience living with and managing that risk through surveillance.
Hermeneutic phenomenology guided the qualitative research design.
The Facing Our Risk of Cancer Empowered online organization.
9 women undergoing breast surveillance for hereditary breast cancer risk recruited through purposive sampling.
Data were collected through semistructured interviews lasting about an hour. A team approach guided data analysis of transcribed interview text based on a modified Diekelman, Allen, and Tanner method.
Lived experience and personal meaning of hereditary breast cancer risk and surveillance.
Hereditary risk of breast cancer involves a change in one's view of life and necessitates engaging in medical vigilance, often making these women feel ill when they are otherwise healthy. Most have personal family experiences of cancer and value surveillance, although they live with the "what if" of a cancer diagnosis when waiting for surveillance results. All women discussed a need for accurate information, support, and guidance from healthcare providers.
Women became their own experts at living with and managing hereditary breast cancer risk. Experiences and interactions within the healthcare system influenced the meaning of breast surveillance.
Nurses should be aware of the high level of knowledge among women living with hereditary risk and respect their knowledge by providing accurate and informed care. That can occur only through proper education of nurses and all healthcare professionals working with women at risk for hereditary breast cancer so that they understand current standards of care and how hereditary breast cancer risk is defined and managed.
目的/目标：探讨有乳腺癌遗传风险的女性如何通过监测来应对这种风险并进行管理。
诠释现象学指导了定性研究设计。
“直面癌症风险赋权”在线组织。
通过目的抽样招募的9名因遗传性乳腺癌风险接受乳房监测的女性。
通过持续约一小时的半结构化访谈收集数据。基于改良的迪克尔曼、艾伦和坦纳方法，采用团队方法指导对转录访谈文本的数据分析。
遗传性乳腺癌风险及监测的生活经历和个人意义。
乳腺癌的遗传风险会改变一个人的人生观，需要进行医疗警惕，这常常使这些女性在原本健康时却感觉不适。大多数人有个人的癌症家族经历且重视监测，尽管在等待监测结果时会因“万一”被诊断出癌症而担忧。所有女性都讨论了需要从医疗保健提供者那里获得准确信息、支持和指导。
女性成为了应对和管理遗传性乳腺癌风险的专家。医疗保健系统内的经历和互动影响了乳房监测的意义。
护士应意识到有遗传风险的女性具备高水平的知识，并通过提供准确且有依据的护理来尊重她们的知识。这只有通过对护士以及所有与有遗传性乳腺癌风险的女性打交道的医疗专业人员进行适当教育才能实现，以便他们了解当前的护理标准以及遗传性乳腺癌风险是如何定义和管理的。
