Centre of Genomics and Policy at McGill University, Canada.
J Law Med Ethics. 2011 Winter;39(4):614-20. doi: 10.1111/j.1748-720X.2011.00628.x.
This article examines the complex and contemporary issue of the return of research results in biobanks. After suggesting the exclusion of some adjacent issues usually flanking the debate, this article reviews the current practices of biobanks on the disclosure of research results to participants. It then focuses more specifically on the debate in the literature before turning to a review of the typology of recent reforms being put forward.
本文探讨了生物库中研究结果返还这一复杂而又颇具争议的问题。在排除了一些通常围绕该议题的相邻问题后,本文回顾了生物库向参与者披露研究结果的现行做法。接着,本文将重点更具体地放在文献中的争论上,然后再对最近提出的各种改革类型进行综述。