儿科研究与个体研究结果的返还。
Pediatric research and the return of individual research results.
机构信息
Centre of Genomics and Policy at McGill University, Canada.
出版信息
J Law Med Ethics. 2011 Winter;39(4):593-604. doi: 10.1111/j.1748-720X.2011.00626.x.
Abstract
The return of individual research results to participants raises many socio-ethical issues and is even more challenging when the participant is a child. The objective of this article is to present an overview of the few ethical guidelines and relevant literature addressing the return of individual results in pediatric research. By reviewing policies and the literature, we present some overarching considerations and delineate contextual issues in order to propose a framework.
摘要
将个体研究结果返还给参与者会引发诸多社会伦理问题，而当参与者是儿童时，情况则更为复杂。本文的目的在于概述少数针对儿科研究中个体结果返还的伦理准则和相关文献，并通过对政策和文献的回顾，提出一些总体性的考虑因素和具体情境问题，从而构建一个框架。
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