结构化心力衰竭项目的患者体验。
Patient experiences of structured heart failure programmes.
作者信息
Tully Nuala E, Morgan Karen M, Burke Helen M, McGee Hannah M
机构信息
Division of Population Health Sciences, Department of Psychology, Royal College of Surgeons in Ireland, 123 St. Stephen's Green, Dublin 2, Ireland.
出版信息
Rehabil Res Pract. 2010;2010:157939. doi: 10.1155/2010/157939. Epub 2011 Feb 7.
Objectives. Patient experiences of structured heart failure rehabilitation and their views on the important components of heart failure services were examined. Methods. Focus groups were conducted with fifteen participants (men, n = 12) attending one of two heart failure rehabilitation programmes. Sessions were guided by a semistructured interview schedule covering participants' experiences of the programme, maintenance, and GP role. Focus group transcripts were analysed qualitatively. Results. Participants indicated that rehabilitation programmes substantially met their needs. Supervised exercise sessions increased confidence to resume physical activity, while peer-group interaction and supportive medical staff improved morale. However, once the programme ended, some participants' self-care motivation lapsed, especially maintenance of an exercise routine. Patients doubted their GPs' ability to help them manage their condition. Conclusion. Structured rehabilitation programmes are effective in enabling patients to develop lifestyle skills to live with heart failure. However, postrehabilitation maintenance interventions are necessary to sustain patients' confidence in disease self-management.
目标
研究结构化心力衰竭康复患者的经历及其对心力衰竭服务重要组成部分的看法。方法：对参加两个心力衰竭康复项目之一的15名参与者（男性，n = 12）进行焦点小组访谈。会议由半结构化访谈提纲引导，内容涵盖参与者对项目、维持治疗以及全科医生角色的体验。对焦点小组访谈记录进行定性分析。结果：参与者表示康复项目基本满足了他们的需求。有监督的锻炼课程增强了他们恢复体力活动的信心，而同伴间的互动和支持性的医护人员提高了他们的士气。然而，一旦项目结束，一些参与者的自我护理动机就会消退，尤其是维持锻炼习惯方面。患者怀疑全科医生帮助他们管理病情的能力。结论：结构化康复项目能有效地使患者培养与心力衰竭共处的生活方式技能。然而，康复后维持干预对于维持患者对疾病自我管理的信心是必要的。
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