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年轻癌症幸存者的医生随访模式:儿童、青少年和青年癌症幸存者(CAYACS)研究计划报告。

Patterns of physician follow-up among young cancer survivors: report of the Childhood, Adolescent, and Young Adult Cancer Survivors (CAYACS) research program.

机构信息

Cancer Control Research Program, British Columbia Cancer Agency, Vancouver, BC.

出版信息

Can Fam Physician. 2011 Dec;57(12):e482-90.

PMID:22170210
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3237536/
Abstract

OBJECTIVE

To describe the frequency and pattern of physician visits in 1998 to 2000 among childhood and adolescent cancer survivors in British Columbia (BC), to compare their use of physician services with use in the general population, and to examine the effects of clinical and sociodemographic factors on care.

DESIGN

Retrospective, observational, population-based cohort study, with a comparison group. Cohort records from population registries were linked to physician claim data and oncology visit records for 1998 to 2000.

SETTING

Outpatient physician care in BC.

PARTICIPANTS

All (N = 1157) survivors of cancer diagnosed before age 20 years in BC between 1970 and 1992 who survived at least 5 years after diagnosis, and an age-sex frequency-matched population sample of 11 570 individuals.

MAIN OUTCOME MEASURES

Probability of a physician visit and frequency of physician visits.

RESULTS

Approximately 97% of survivors saw at least 1 physician in the 3-year period, compared with 50% of the general population sample. The probability of a GP visit was 96% higher (adjusted 95% confidence interval [CI] 1.8 to 2.1), and the likelihood of a specialist visit was 157% higher (adjusted 95% CI 2.4 to 2.8) than for the general population. Survivors were more than twice as likely to see GPs at least 10 times (adjusted relative risk 2.23, 95% CI 2.0 to 2.4) and had 49% more visits than the general population. Cancer diagnosis and treatment affected visit patterns, but socioeconomic status and rural residency did not significantly affect the probability of a visit.

CONCLUSION

Demand for physician care among childhood and adolescent cancer survivors is considerably greater than for the general population, and this need persists many years after diagnosis. Physicians need information on the unique health care requirements of this patient group in order to provide appropriate care.

摘要

目的

描述不列颠哥伦比亚省(BC)儿童和青少年癌症幸存者在 1998 年至 2000 年间就诊的频率和模式,将他们的医疗服务使用情况与普通人群进行比较,并研究临床和社会人口因素对治疗的影响。

设计

回顾性、观察性、基于人群的队列研究,设有对照组。将来自人群登记处的队列记录与 1998 年至 2000 年的医生索赔数据和肿瘤就诊记录相链接。

地点

BC 的门诊医生护理。

参与者

所有(N=1157)在 1970 年至 1992 年间在 BC 被诊断为癌症且年龄小于 20 岁的癌症幸存者,以及 11570 名年龄性别频数匹配的人群样本。

主要观察指标

就诊概率和就诊次数。

结果

大约 97%的幸存者在 3 年内至少看了 1 次医生,而对照组中只有 50%的人有此就诊行为。普通人群看全科医生的概率高 96%(调整后的 95%置信区间[CI]为 1.8 至 2.1),看专科医生的概率高 157%(调整后的 95%CI 为 2.4 至 2.8)。幸存者看全科医生的次数至少为 10 次的可能性是普通人群的两倍多(调整后的相对风险 2.23,95%CI 2.0 至 2.4),就诊次数比普通人群多 49%。癌症诊断和治疗影响就诊模式,但社会经济地位和农村居住状况对就诊概率没有显著影响。

结论

儿童和青少年癌症幸存者对医生护理的需求大大超过普通人群,而且这种需求在诊断后多年仍持续存在。医生需要了解这群患者独特的医疗保健需求,以便提供适当的护理。

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