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医护人员对亲人了解患者绝症以及亲人对支持的需求的看法。

Hospital staff opinions concerning loved ones' understanding of the patient's life-limiting disease and the loved ones' need for support.

机构信息

Palliative Care Unit, Sahlgrenska University Hospital, Gothenburg, Sweden.

出版信息

J Palliat Med. 2012 Jan;15(1):51-5. doi: 10.1089/jpm.2011.0297. Epub 2011 Dec 23.

DOI:10.1089/jpm.2011.0297
PMID:22196169
Abstract

The aim of this study was to investigate the opinions of nurses, assistant nurses, and doctors about whether the patient's loved ones understand that the patient has a life-limiting disease, and if they talk about these matters with the patient or staff. The study was quantitative in design with data collected by means of a semi-structured questionnaire. The study was conducted at geriatric, oncology, and urology wards at a university hospital in western Sweden. Results indicate a perception that loved ones understand the seriousness and consequences of the disease. Professional caregivers perceived an association between the loved ones' understanding of the fatal disease and their ability to cope with the situation. In addition, the study found that follow-up activities after the patient's death are mostly lacking.

摘要

本研究旨在调查护士、助理护士和医生对患者家属是否了解患者患有绝症的看法,以及他们是否与患者或医护人员谈论这些问题。该研究采用定量设计,通过半结构化问卷收集数据。该研究在瑞典西部一所大学医院的老年科、肿瘤科和泌尿科进行。研究结果表明,患者家属对疾病的严重性和后果有一定的认识。专业护理人员认为,家属对致命疾病的理解与其应对能力之间存在关联。此外,研究还发现,患者去世后的后续活动大多缺乏。

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Challenging conversations with terminally ill patients and their loved ones: Strategies to improve giving information in palliative care.与绝症患者及其亲人进行具有挑战性的对话:改善姑息治疗中信息提供的策略。
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